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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
10-23-2007, 10:17 PM
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Jacob Home!
 Well, thank God, Jacob came home last night. I forgot how awful it is, staying in the hospital "round the clock". By Sunday night, we were exhausted. He is doing much, much better. They sent him home with antibiotics and some ventolin, to use as needed to help clear his lungs. Poor buddy. I am just so relieved he is doing better. Had a scare tonight though - his alarm went off, as his secretions were bubbling over and the suction machine was not working  - sats dropped to 67 quickly - thank God we have a back-up suction machine that DH had already brought upstairs. I quickly changed the tubing to the other machine and suctioned him. The whole thing lasted less than a minute, but felt like an hour. I'm still shaking! As it turns out, the power adapter had come unplugged and in my panic - who has time to "trouble shoot"?????!!!!
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Mom to Jacob, 26 Weeker - Our miracle boy, hero  and the light of our lives Born 06/25/06; trached 10/17/06 for bilateral vocal cord paralysis, laryngomalasia, tracheamalasia, acquired subglottic stenosis, Failed Double Stage LTP 2009, Failed Single Stage LTP 09/16/10, Retrached 10/03/10;CP.
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#2
10-24-2007, 05:51 AM
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Glad Jacob is home, and hope you can all get some rest now
 Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#3
10-24-2007, 06:25 AM
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Home sweet home! Did they give you a date for your decan?
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Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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#4
10-24-2007, 08:47 AM
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Oh the feel of your own bed. Sounds like you handled your little scare just fine (act then shake later). Hope you can now go ahead with the decanulation. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#5
10-24-2007, 10:29 AM
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Glad to hear Jacob is home!!!!
Annette
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Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.   
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#6
10-24-2007, 12:44 PM
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Glad to hear he is home. I'm sorry you had the suctioning scare. Back-up machines are great!
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Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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#7
10-24-2007, 12:59 PM
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Glad to hear Jacob is home! Yah-sometimes there isn't time for troubleshooting! Good thing you had another machine!!
Glad to hear he is feeling better 
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#8
10-24-2007, 06:15 PM
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Poor guy.... glad to hear he is on the mend.... and still keeping you on your toes! (the last thing you need when you are already on pins & needles!)
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Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -  Follow decan at: http://sleepy-dogs.blogspot.com/
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