Cedric 26 th surgery today

My little figther · #1 10-09-2007, 06:57 AM

I can't believe he already had 26 surgeries, his first one was on December 22, 2006 then it was one every 2 weeks, now with the help of Cidofovir medication it is every 3 weeks to a month. We will also know if the medication I3C bought in Utah started to do some good or not yet and hopefully be able to space the surgeries to 2 to 3 months and if we are really lucky to 6 months to a year, until he can get another much more powerful immune system booster Interferon - then do an LTP since his airways don't grow and are stuck at 3mm.

Hopefully Cedric will also have his surgery to reduce his inguinal hernia, my daugther has been trying for about 2 to 3 months now to have it done at the same time that the debridment of the polyps in his voice box. It is scheduled but it has been already twice before then postponed because the general surgeon suddenly had an emergency.

I am so tired, Cedric has not been out of the hospital since July. My daughter and I are taking turns to go and see him so he always has a visitor a day but to be honest with you it begins to be very draining for both of us and with each surgery we never know if he will have the trach or not .... either way the doctors play with fire... and I truly hate it.

Each and one of you have been or are going trough so much and even though we are not in the same boat we all rowing in the same direction hoping that everything goes well that they will get better. I have to believe that it will get better

Anyway enough of my rambling today I have to be positive and I have to show Cedric that I am as strong as he is.

Thank you for listening and If you can have a little extra thought or prayer for my little fighter, I would truly appreciate it.

Michelle

JWorthington · #2 10-09-2007, 08:13 AM

Wow Michelle, 26 surgeries is an awful lot for a little guy to take! You're right - Cedric is definitely a fighter, he is determined to get through this. It is dreadful when they are in the hospital for so long - you are torn between wanting to be by their side all the time, but drained from not enough sleep and needing to get on with your life in some way. When Sam was in hospital for so long I used to be surprised every time I left the hospital that people were actually carrying on with their everyday lives, it felt strange. We resided at the hospital for so long I think even I was becoming institutionalised. I hated being at the hospital, but when I came home and my DH took over I immediately wanted to go back to be by his side.

praying that the surgery goes well for your little guy.

Juliex

sassyangel4u2nv · #3 10-09-2007, 08:40 AM

Keep the faith.. He is a strong young man and he can handle this.. You can handle it too.. THe bast way to handle it is to talk about what your going through.. SMile and laugh... It will help in the end.. IF he can go through 26 surgeries you can be by his side waiting ... We all are here for you.. I have not been through 26 surgeries but gone through 8. I only have two more to go through.

We are all here for you.

alizesmom · #4 10-09-2007, 02:38 PM

I hear you. Having a child (or grandchild) go through so much is hard and staying at the hospital day in and day out can tire the soul. I will pray that God sends all of you His peace and strength. Karen

TommysMommy · #5 10-09-2007, 02:51 PM

Merciful Heavens! 26 is too many for such a little guy. I hope the doctors are successful and he can go another day trach free!

I don't know all of the details of Cedric's case, but in Tommy's, I was very grateful for the trach because it meant his airway was stable and we could hold him and bring him home. Do his doctors feel it is necessary to keep putting the little guy through all of these surgeries just to avoid a trach, or is there more to it? Forgive my ignorance. I know you guys are doing what is best for him. I just know in Tommy's case, a trach gave us freedom. (At least enough freedom for him to come home and be a part of our family)

WeAdoptKids · #6 10-09-2007, 05:17 PM

Lordy be, that is a lot. I had no clue that he had been through so much. You are right, a fighter he is an a good one at that.My prayers are going out for you and that you will find the strength to do what needs to be done.

Hugs to you,
Roberta

Lifeisgood · #7 10-09-2007, 07:15 PM

Michelle,

I am so sorry. I didn't realize that you were still there. We were just in last week for surgery for Harlie. I would have looked for you if I had known. Although I believe for the first time, she did not go to the PICU. Is Cedric still in the PICU? Who's the general surgeon? Ours is Dr. Sandler and I love him.

Well, I know that draining hospital feeling. It is terrible. And it is so painful to have to watch your little one go through so much (especially 26!). I wish there were magic words... Just know that you guys are in our thoughts.

Hang in there!

Christy