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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
10-03-2007, 07:48 PM
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Naked Neck Club!
Mina Loy Akira Checel has no trach no more! She got it out yesterday with no problems. We stayed at the hospital overnight (always fun) and came home today. Both sets of grandparents have already been over holding ther breath at every coo, sneeze and cry - it's amazing!
So the third try did the trick - the first time the cords were not coordinated, the second time she had a fibroma removed and now, it's off. I don't think it's fully sunk in yet - we've been so used to saying no to everything and wishing we could go to weddings, parties, the park, the supermarket even with our baby! I have never driven her alone anywhere or taken her anywhere but the doctors. Oh, as for the HME debate, we never persued it with the EMT. She said it was dangerous and we knew it was coming out, so we just let it go. I just feel badly for her future patients who want an HME! She changed her dressing on her stoma this morning and it is looking good. We're supposed to change it when need be. It seems impossible to keep airtight, since she's so crazy active. Any ideas? We go back on Friday to check her stoma and make sure she's good to go. It's unbelievable how amazing it is to hear her cry. She can also moan and coo and sneeze. I was so used to her being silent and never really thought about the demension sound would bring to my child! I was so caught up with the logistics of being homebound that the happiness I feel now is incredible. I'm so grateful for every breath she takes. I hope the gratitude lasts!  ________ Montana Medical Marijuana Dispensary Last edited by minaloy : 02-16-2011 at 03:58 AM. 
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#2
10-03-2007, 07:53 PM
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Wow I had no idea this was around the corner, but YIPPEEEE!!!!! I cannot imagine what a joyful thing it must be for you Thai!
Enjoy your beautiful little girl and her naked neck!
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#3
10-03-2007, 07:54 PM
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Thats good new. Good job Mina Loy. Lets see some pic's of that naked neck.
  
__________________
Vennesssa and Chris Married on June 5, 2004 ~ going on 4 yrs but feels like 50 yrs KIDS Stepkids- Morgan 14, Brooke 11  Mine- Randy 11, Christian 8 Ours- Ashley (stillborn 4-9-05)  , Jordan born 6-10-06-(bi-lateral paralized vocal cords)  trached on 6-23-06Decanned on 8-20-'08, Had laser sugery to fix the cords. The back half of one side is gone for now, but will grow back in time. My site http://www.myspace.com/mom_2_angels
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#4
10-03-2007, 07:57 PM
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Hip, Hip, Hooray! I'm sure your gratitude will last. Just remember it when she is three and sassing you 'til the cows come home. Ok. Since you live in LA maybe she will sass you 'til the oddballs come out on Venice Beach!
Suzanne
__________________
Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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#5
10-03-2007, 08:16 PM
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Congrats!! Enjoy you new found freedom!!
__________________
Has a daughter who is vent dependent.
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#6
10-03-2007, 08:20 PM
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Congrats and enjoy listening to her every sound
__________________
Amanda Mom to James (who passed away),Mike 13, Chianne 12, Sierra 9, Alysen 6, and our miracle baby Elijah 5 years old, born with Walker Warburg syndrome, born without eyes, hearing loss, seizure disorder, g-tube,trach and completely weaned from the vent, and has been a true blessing, miracle, and fighter. 
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#7
10-03-2007, 08:28 PM
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Yah!!! That's awesome!!!!! Congratulations!!!
__________________
Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#8
10-03-2007, 09:31 PM
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WooHoo!!
__________________
Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#9
10-03-2007, 09:33 PM
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Way to go. That is such thrilling news. I hope all stays well and you can enjoy all those sweet little noises she makes
__________________
LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#10
10-03-2007, 09:50 PM
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That is so fantastic! I'm so happy for you. May her voice ring loud and clear. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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