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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
09-29-2007, 01:51 AM
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4 Months...
went to the dr yesterday. and he wanted to do a decann.
 yay. then her father said no.  dang it. he wants to work on her eating issues knowing that she wont choke on anything before we do that. which i kinda understand but i do want it out lol. so were getting speach to work with her and the dr said we have unstil spring. and in spring he is going to twist his arm if he still saies no. cause by then it might start causing more problems than good to have it in. plus with the winter coming it wil give us a chance to see if she gets a cold how well she is going to do. being she hasnt had a cold yet since he took her off the vent. so we go back to see him on Feb. 4th and then we are going to get decannulated. YAY i cant wait. its going to be so great. the only thing i am not looking forward to the the farting noises she likes to make with the trache out. lol its so funny and he said thats all he is going to do is take it out and see if it is going to close on its own so yea farting noises here we come!!! but i can put up with that to have my baby all better. thought i would let you all know we get decanned in 4 months! wish us luck for everything to go as planned.
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#2
09-29-2007, 01:53 AM
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so far she is on the passy all day and the hme ony when she is sleeping. so we are doing great as far as going in that direction to the decann.
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#3
09-29-2007, 07:00 AM
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Wow! Exciting news and good luck!!
Lara
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Parents to Isaac, born 12/8/06, idiopathic bilateral vocal cord paralysis, trach'd since 11 days old, repair of acquired tracheomalacia and Decannulated on May 15, 2008, still with some vocal cord paresis (decreased motion)  
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#4
09-29-2007, 07:28 AM
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Good luck
xJx
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#5
09-29-2007, 09:10 AM
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That's exciting!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#6
09-29-2007, 09:14 AM
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I pray all goes well for you and the 4 months just fly by with a healthy girl. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#7
09-29-2007, 02:48 PM
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Congrats! How exciting!
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#8
09-29-2007, 03:21 PM
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thank you all!
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#10
09-29-2007, 09:02 PM
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thanks to all
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