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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-29-2003, 08:33 AM
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Hi Y'all,
We found out Thursday that Lily's Nissen fundo is herniating up into her chest whenever she coughs, strains, cries, etc. Â*Sure explains why she's been throwing up every time she tries to eat. Â*We really thought we were FINALLY done with her surgeries but it looks like we'll have another one coming up this summer. Â*We are really bummed out. Has anyone else's child had to have a redo fundo/hiatal hernia repair? Â*Was it able to be done laparoscopically? Â*We'd appreciate hearing from you! Thanks, Erica (Lily's Mom) 
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 Our fabulous Lily was born 5-26-01 with partial trisomy 7q, Pierre-Robin sequence, VSD, GER; had trach, GT, Nissen at 4 weeks, cleft palate repair at 6 months and 18 months. Decannulated 11-15-04. Proud big sister to Benjamin 10-10-03, baby Vivienne 3-5-07! 
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#2
06-29-2003, 07:09 PM
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My son had the same thing happen w/ his nissen. His doctor is not concerned enough at this point to re-do the surgery. She said the second time is not always as successful. He is just being followed closely and he is on pepcid to help w/indigestion. He also has an upper GI every 6 months (actually he is do now for one) and he had a gastric emptying scan.
But, to answer your question: she said that if need be, it could be done the second time laparascopically.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#3
06-30-2003, 08:40 AM
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Alli had to have her fundo redone. The first was done lapriscopically and only lastwerd 4 months. The second was done in open surgery and we are currently having some tests to see if it is still holding. She didnt have a hernia. She recovered rapidly from the open surgery, was pretty much up and running in 3 days. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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