We wish you the best as you prepare for the surgery in September. I know this is hard on you and can see that you're stressed about it all. If she really needs the trach, then you just have to go ahead with it and go from there. Hopefully she will do well with it and not fight you - regardless - you will make it work. Please do keep us posted. Everyone has great ideas concerning supplies and the like around here.
Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04