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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

09-12-2007, 11:36 AM
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Join Date: Mar 2007
Location: Bardstown, KY
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Ulcer near stoma...Pictures
Tommy has developed some sort of ulcer above his stoma. It sits under the center of the trach tube, so that when I am cleaning, I practically have to decan him to clean it and apply triple antibiotic cream. I've been doing this for 3 days now a couple of times a day, and I am keeping split gauze between it and his tube. I hope this helps it. I don't know what else I can do. I do not want an infection that close to his trach! When he woke up this morning, the gauze had normal secretions soaking it, but I noticed a few spots of green and a couple drops of blood on the gauze as well. He's been on amoxicillian all last week. I'm tempted to give him the rest of the bottle just to keep this thing from growing something nasty.
Anybody ever see this before??? What caused it and what else can I do?
[IMG]  [/IMG]
[IMG]  [/IMG]
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.

Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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09-12-2007, 11:45 AM
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Location: Grafton, MA
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Are the trach ties too tight? I would get him to the doctor to check this.
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Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube.
Home Page: http://www.bissells.com
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09-12-2007, 12:41 PM
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Mentor
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Join Date: Aug 2005
Location: Canada
Posts: 4,648
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ouch!!! poor little guy. no suggestions but go to the doc.
Tess
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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09-12-2007, 12:51 PM
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Senior Member
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Join Date: Dec 2004
Location: England
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Yes, I would definitely get a doctor to look at that. Can you try a new trach tube? sometimes I have noticed that the plastic can be a bit sharp and it could be digging into his neck.
Good luck
Juliex
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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09-12-2007, 01:01 PM
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Join Date: Mar 2007
Location: Bardstown, KY
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Quote:
Originally Posted by cbissell
Are the trach ties too tight? I would get him to the doctor to check this.
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I can put the tip of my finger under the ties all the way around, so I know they are not too tight. I will try changing the tube tomorrow when we do trach care, and I will call his doctor. Thanks!
__________________
Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.

Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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09-12-2007, 02:36 PM
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Member
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Join Date: Jul 2003
Location: Indianapolis, Indiana
Posts: 128
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You might ask your child's doctor for a consult with an ostomy/wound nurse? Because it's so close to the trach stoma, maybe an ostomy nurse might have some good suggestions.
Leslie, mom to Sam
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09-12-2007, 03:04 PM
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Location: USA
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Pressure sore!! We're having the same problem right now.
Elijah won't let us keep any padding under the flange or he'll rip it out along with the trach.
Duoderm works well. I'm trying to reorder that but everyone is out around here.
Both twins have it. Ooooh! I'll take a pic too!
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!
The Birthday Boys by TwinTransfusion, on Flickr
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09-12-2007, 03:46 PM
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Senior Member
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Join Date: Mar 2007
Location: Bardstown, KY
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Quote:
Originally Posted by twintotwin
Pressure sore!! We're having the same problem right now.
Elijah won't let us keep any padding under the flange or he'll rip it out along with the trach.
Duoderm works well. I'm trying to reorder that but everyone is out around here.
Both twins have it. Ooooh! I'll take a pic too!
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Ahhh! Makes sense! I emailed the pictures to our ENT's nurse. He happens to be in a satellite clinic today, so he is going to see them first thing in the morning. Hopefully he can call us in a prescription for the duoderm. I've been putting split gauze under his trach for the past couple of days, but it doesn't seem to be helping any. Gosh, I almost feel like I need to get a trach tube that doesn't sit on his skin for a few days. Don't know how that one would work!
__________________
Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.

Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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09-12-2007, 03:51 PM
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Join Date: Mar 2002
Location: Fort Collins CO
Posts: 1,540
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Oh yeah, we've had the same thing here when Celia was a baby! Those chubby little necks are cute but can really mess things up. Keep it really dry,use guaze or Duoderm, I used bactroban on Celia's and that seemed to work!! good luck!
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http://mamazgirlz.blogspot.com/
Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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09-12-2007, 08:01 PM
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Join Date: Mar 2007
Location: ohio
Posts: 261
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Ouchy. Hope it heals soon! 
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Amanda
Mom to James (who passed away),Mike 13, Chianne 12, Sierra 9, Alysen 6, and our miracle baby Elijah 5 years old, born with Walker Warburg syndrome, born without eyes, hearing loss, seizure disorder, g-tube,trach and completely weaned from the vent, and has been a true blessing, miracle, and fighter.
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