OK, it's been a bit better lately, but I'm wondering if you all use a 50 psi compressor like ours? If so, what do you set it at? And what do you set the amount of H2O at? I've put Alli's at 28% which allows the most water, and the compressor runs around 25-30. Her shirt ends up wet and sometimes the pillow as well, but if I set it at any less she will still get dried up. And do you use distilled water? Can tap water be boiled and used instead? (We are struggling for $ right now and distilled is 98c a gallon!) We're still waiting for July appointment with the new pulm so Im trying to work things out for myself rather than wait...Thanks, Deb
Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08