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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-14-2007, 10:26 AM
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Wish us luck
We are flying out tomorrow for Virginia for our 6 month scope. Colin will see his doctors in clinic on Thursday and the scope for Friday morning. Then back on the plane. I can't help but feeling a little hopeful that his airway has grown. He is speaking so well past his trach and getting enough air out of his mouth to blow bubbles. But, as usual my stomach is upset and not sleeping very well due to the fear of they will find something else wrong.
Please keep us in your prayers. We will post as soon as we get back to Texas. Nicole 
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#2
08-14-2007, 10:29 AM
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  I'll be hoping for the best possible news for Colin!!
__________________
Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#3
08-14-2007, 10:31 AM
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Fingers crossed for good luck!!
That's a loooong way to have to go for an appointment Lara
__________________
Parents to Isaac, born 12/8/06, idiopathic bilateral vocal cord paralysis, trach'd since 11 days old, repair of acquired tracheomalacia and Decannulated on May 15, 2008, still with some vocal cord paresis (decreased motion)  
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#4
08-14-2007, 10:36 AM
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I hope it all goes very well.
__________________
Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#5
08-14-2007, 10:40 AM
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Good luck Colin. Hoping for a big airway. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#6
08-14-2007, 01:26 PM
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Keeping good thoughts for all of you!
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#8
08-14-2007, 05:37 PM
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I hope everything goes well! Keep us posted!
__________________
Sarah, Mommy to Malakai (9), Aubrey (8), and Keturah (6) trach, vent, Chiari I, BVCP, CCHS http://s109.photobucket.com/albums/n73/lovemymak/  
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#9
08-14-2007, 06:46 PM
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I'll be hoping to hear good news when you get back!
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#10
08-14-2007, 08:55 PM
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Wishing you lots of luck. Hope everything goes well.
__________________
Has a daughter who is vent dependent.
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