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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
| View Poll Results: How old was your child when they were decannulated, or will they never be decanned? | |||
| under 1 year |
  
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5 | 7.46% |
| 2-3 yrs |
  
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25 | 37.31% |
| 4-5 yrs |
  
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5 | 7.46% |
| 6-8 yrs |
  
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2 | 2.99% |
| 9-11 yrs |
  
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1 | 1.49% |
| 12-14 yrs |
  
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0 | 0% |
| 15-17 yrs |
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0 | 0% |
| over 18 yrs |
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1 | 1.49% |
| don't know if they will be decanned |
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21 | 31.34% |
| will likely never be decanned |
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9 | 13.43% |
| Multiple Choice Poll. Voters: 67. You may not vote on this poll | |||
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#1
08-08-2007, 10:31 PM
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NEW decan poll - revote if you already did the first poll!
After seeing the thread "Mythbusters", I thought I would politely ask to start this poll over. I failed to add the option of never being decanned on the first poll, and would like to add some more options to get a more realistic look at the prognosis for our kids.
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Sarah, Mommy to Malakai (9), Aubrey (8), and Keturah (6) trach, vent, Chiari I, BVCP, CCHS http://s109.photobucket.com/albums/n73/lovemymak/  
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#2
08-08-2007, 10:42 PM
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I voted Most Likely will not be decanned. Emma has no swallow reflex, and apena. We would have to clear up the apnea to ditch the vent, then "teach" her to swallow to get decanned. From what I have been told you can't teach a reflex they don't have. Its not like learning something either its there or its not.
So Emma will have a trach for life, its not a big deal for us really. I mean no we don't like the trach but if its what she needs its what she needs, we didn't give surgery a second thought to put it in and we don't give it a second thought day to day, its just a part of who she is
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#3
08-08-2007, 10:46 PM
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Yes, now I remember why I didn't vote on that poll. You didn't leave the option of "trying to decan in the near future".
I voted "don't know" because really, I don't know! I just HOPE.
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#4
08-09-2007, 12:01 AM
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I also voted "Don't know" because of Tommy aspirating. If we open his airway and he continues to aspirate, we are looking at a worse scenario than just a trach! Then again, how do we know if he will aspirate forever?
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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#5
08-09-2007, 09:49 AM
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I voted 6-8 since thats when miss petunia will be having her midface advancement, then she will (hopefully) be decanned.
Annette
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Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.   
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#6
08-09-2007, 10:36 AM
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I voted don't know too, though we live in hope
 Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#7
08-09-2007, 11:03 AM
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I voted likely to be never decanned. I'm a lifer in this club.
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Becky Adult w/ ea/tef-repaired, chronic lung disease, o2, vent, j-button, trach and wife to the greatest husband in the world. My blog: www.beckyhoughten.com 
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#8
08-09-2007, 12:15 PM
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I voted under one year because summer only had her trach for a month due to an emergency.
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Tiffany mom to Summer born 7/13/03 old emergency trach due to aspiration of foreign objects on may 13, 2004decanulated june 17, 2004. http://www.myspace.com/tiferlyn9042
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#9
08-09-2007, 12:31 PM
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OK I was a bit stupid and put in 3 choices. Over 18(cuz ofd my last decan), also don't know and probably never.
I'm probably gonna be a lifer in it as well. One club you don'r relly want to be a part of. But hey the alternative sucks worse than a trach. Robin
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Former 24 weeker, decannulated 2 times, retrached Feb 2006. Mom to 4 crazy kids: Owen 8, Hanna, Bailey and Olivia 6 yr old triplets. Always striving for the perfect airway!  [/url]
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#10
08-09-2007, 12:53 PM
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I'm not going to vote because I really have no idea for Ainsley. I wonder how many of the parents with decannulated kids still visit this site and will vote? Hmmmmm.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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