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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-03-2007, 01:52 PM
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medela clario pump
I ordered one from amazon and it kept being delayed. I decided to call Medela directly--it was sooooo easy. They offer the pumps for a very reasonable price--not as cheap as amazon, but you will actually receive the machine! They said we should receive it in 3 to 4 days. We got the deluxe model with the ac/dc and car adapter. I'll let you know how it is when it arrives.
The sales rep said it will fit in a diaper bag or back pack easily. The box it ships in is 15 x 8 x 12, it weighs 9.8 lbs for shipping--that includes a carrying case and accessories. I'm excited!!! It's sad what gets me excited these days... 
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Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!! 
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#2
08-03-2007, 03:07 PM
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May I ask how much or is that a no no. We are wanting one but holding out till more of you report about how much you love yours. Also, will you post the number
 )Thanks, Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count...  Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all. http://www.merrillsimonfamily.blogspot.com/
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#3
08-03-2007, 06:51 PM
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Funny, I just ordered one direct from the company today also. They initially quoted me $580 altogether but get this: the rep called me back and said they had a different price for patients who ordered. I can't remember quite what she said but I know it was over $100 less. Sorry I don't have the number on me, I pulled it up by googling medela and going to contact us. I too got the deluxe since it has the car adapter. It was item #0147220. Hope this helps. Karen
PS: Replacement cannisters are reasonable at about $9 each and can be washed in the dishwasher.
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#4
08-03-2007, 11:29 PM
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We have the AC version and have not used it yet. It is much quiter and about 1/2 the size. It seems like direct to Medela is the way to go. The canisters are reasonable, but keep in mind they are only 500ml, so you may be emptying more often. I plan on picking up some extras. Keep in mind that their hose has the thumb port on it, and is meant for a special type of catheter. No biggie, I just plan on getting the hoses from our DME still. Although, the trachoe suction catheters without the thumb port are tempting at $40/100. Wish we could get the money directly and but those, as we would then have enough to use without washing.
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Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.”
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#5
08-04-2007, 03:04 PM
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Tommy's Dad---what are you referring to when you say the hose has a thumb port? What type of catheter? I cant think of a suction part I'd call a "hose" so I'm a little lost. Can you post a photo? We're waiting on some funds to come in to order one, we can get reimbursed from our Flex. Medical Spending Account, but still have to pay for it up front and wait to be reimbursed. i really want to get one before the new school year starts (8-14 here). Thanks deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#6
08-04-2007, 03:15 PM
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Oh, I get it now...you were meaning the tubing! Duh, some days I am past stupid. It looks like the tubing from the standard units would fit for use with regular suction catheters. I watched the little movie on it, it wasn't available last time I visited the website. Now I am really hyped about it, I can't wait to order one. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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