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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-08-2003, 08:38 PM
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congratulations on Felicienne's decannulation! What wonderful news. We are going thru the same thing ourselves as far as keeping the stoma covered and I have absolutely no advice for you! I have purchased what seems to be every type of bandage under the sun and nothing seems to work very well as far as staying on (he will need a surgical closure so we're dealing w/secretions). His skin is very sensitive so that's been a problem as well w/the adhesives AND he fights us whenever we try and cover the stoma up so I have just about given up!
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Anne, mom to Evan, born 1/18/01, preemie, TEF/EA repaired, subglottic stenosis, laryngeal web, trach at 6 wks, LTP 8/02, decannulated 5/17/03 , Mic-Key button removed 7/2/04. http://www.tracheostomy.com/trachkids/kids11/evan http://anne-evan.blogspot.com 
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#2
06-08-2003, 08:44 PM
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Congratulations!
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Lisa- mom of John Patrick age 9 and formerly trached Joel age 4- DECANNULATED JANUARY 25, 2004!!! Foster mom to Sierra born July 16, 2005- CHARGE syndrome, grade IV kidney reflux, severe hearing loss, trach & gtube for laryngeal cleft and chronic aspiration, gorgeous blue eyes
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#3
06-09-2003, 10:45 AM
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Karsten-
Your daughter is just beautiful!!!!  I especially love her red hair and the curls. She seems to be so happy, and I'm so glad she was able to be decannulated. I have no advice on the stoma - we aren't to that point YET - but hoping to be this year!!!Congrats! christy
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Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
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