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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-25-2007, 08:31 PM
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My Appointmenet today
HI All
I had a clinic appointment today with Dr Cotton. It was a quick one too. I was in and out in under 45 minutes. That's amazing for him. The good thing is this. He actually gave me the option to do the flexible scope or not. Ummmmm Duh let's think i chose not to. I think the only reason he gave the option was because i had no complaints. Whoo HOO.  First time in a long time I haven't had any complaints.He then said let's "try" to keep me out of there for 6 months. I told him i would try my best. It's nice to hear that. THe rest of our conversation was a social one. My husband and I were able to meet up with Nathan's Mom. We had a nice visit. Little Nathan was sleeping so i didn't want to go upstairs and disturb him. Just wanted to let you guys know about today. Robin
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Former 24 weeker, decannulated 2 times, retrached Feb 2006. Mom to 4 crazy kids: Owen 8, Hanna, Bailey and Olivia 6 yr old triplets. Always striving for the perfect airway!  [/url]
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#2
06-25-2007, 11:07 PM
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Wow Robin! I'm so glad you had such a great appt! Keep yourself healthy girl!!!
 Sarah
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Sarah, Mommy to Malakai (9), Aubrey (8), and Keturah (6) trach, vent, Chiari I, BVCP, CCHS http://s109.photobucket.com/albums/n73/lovemymak/  
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#3
06-26-2007, 04:37 AM
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Glad you had a good appointment!!
Lara
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Parents to Isaac, born 12/8/06, idiopathic bilateral vocal cord paralysis, trach'd since 11 days old, repair of acquired tracheomalacia and Decannulated on May 15, 2008, still with some vocal cord paresis (decreased motion)  
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#4
06-26-2007, 06:07 AM
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That sounds good! I hope you stay all well so you dont have to go back before that! Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#5
06-26-2007, 07:25 AM
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That's fantastic. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#6
06-26-2007, 11:14 AM
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Good news Robin - stay well
Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#7
06-26-2007, 12:50 PM
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Glad to hear you are doing well! That was a long drive for such a short appointment
 . We'll try to work something out soon... Take care
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~Carrie
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#8
06-26-2007, 09:42 PM
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Good to hear!!!! I hope you can manage to keep yourself away from the Drs... wouldn't that be SOOO nice!!
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Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -  Follow decan at: http://sleepy-dogs.blogspot.com/
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#9
06-26-2007, 11:11 PM
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Sounds like a wonderful appointment really. Thanks for sharing it with us. It is good when there are no problems. And we are expecting you to hold it to the 6 months and not sooner
 )Hugs, Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count... Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all. http://www.merrillsimonfamily.blogspot.com/
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