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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-21-2007, 01:11 PM
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MRI/CT scan tomorrow
Sam is going to the hospital tomorrow to be scanned. He is having an MRI of his spinal cord (this is to check for tethered cord which is common in children with his condition). He is also having a CT scan of his chest (this is to confirm what has caused his chronic lung condition). He is being given a general anaesthetic - because he has such a 'unique' airway they do not feel sedation is safe. As long as everything goes ok we expect to be home tomorrow night. Wish us luck (and no spinal problems!)
Love Julie 
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child 
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#2
06-21-2007, 01:38 PM
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Good luck! i always hate test,test and more tests, but occasionally you get some good information. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#3
06-21-2007, 02:32 PM
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Oh Julie!! Is it so soon? Man this has crept up and taken me by surprise! I hope it goes really well and that Sam sails through the GA and comes round fine. Please keep us posted! Loads and loads of
 Lots of love, Kate XXX
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
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#4
06-21-2007, 02:37 PM
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 I will be thinking about you and Sam tomorrow.
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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#5
06-21-2007, 04:08 PM
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Good luck Julie.
I wish you guys all the best. Let us know how it goes. Love, Tess
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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#6
06-21-2007, 04:30 PM
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Good luck Julie! I hope you get some good results.
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Sarah, Mommy to Malakai (9), Aubrey (8), and Keturah (6) trach, vent, Chiari I, BVCP, CCHS http://s109.photobucket.com/albums/n73/lovemymak/  
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#7
06-21-2007, 06:32 PM
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Best of luck. Hope the results are all that you hope for. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#8
06-21-2007, 08:54 PM
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Wishing you lots of good, good,
Christy
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Christy, Mom to Murphy, (8), Harlie (6) and Cooper (4). Harlie has Goldenhar Syndrome & VACTERL Assoc. Missing left ear/canal, left eye anomalies, g-tube & trached due to underdeveloped jaw, 5 open  surgeries, three jaw reconstructions (still trached, though), spinal fusion surgery, 30 surgeries total so far. www.lifesinceharlie.blogspot.com [IMG]  [/IMG]
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#9
06-21-2007, 10:24 PM
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Last edited by zachgram : 03-06-2011 at 05:56 AM.
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#10
06-22-2007, 05:29 AM
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Julie,
Many thoughts and prayers that you get some answers and good news on the potential spinal issues. I hope you are indeed able to come home tomorrow night! Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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