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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-05-2003, 03:57 AM
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Jack went back to theatre last night, they couldnt find where the bleeding came from- they corterised the wound, and it has stopped bleeding and he looks like a new boy... We can finally see the trachy.
He is a little anaemic as he lost some blood and he may have to have some blood given to him, we will find out tomorrow. I will have to put him up on the site soon..
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Jack (4 years) X-Linked Myotubular Myopathy, Trach/Vent/G-Tube, Cute button nose, Heart melting smile, Cheeky as can be! 
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#2
06-05-2003, 07:08 AM
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Jess
So glad Jack is doing better! I know that it was a scare for you all. Can't wait to see a picture. -Shari
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Miracles Do Happen!!! Jacob's mom, 3 yr old with DiGeorge/VeloCardioFacial Synd., TOF with APV, trached 9-11-01, G-button, LTV 950 for 2 1/2 years. Decannulated April 12, 2004!!!
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#3
06-05-2003, 09:20 AM
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Jess;
Hope things get better real soon. Â*We are thinking of you and Jack. Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#4
06-05-2003, 09:40 AM
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Jess,
Hopefully this will completely take care of it. I know that it is so difficult to see him lying there with all this going on. I remember when Gaithy had her surgery - vividly of course. I hate for her to be sedated for long periods - I miss her personality terribly when I'm not able to see it for awhile!  Hopefully things will clear up soon now and you'll be coming home. What is the next plan of action?christy
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Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
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#5
06-05-2003, 09:45 AM
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Just wanted you to know, once again, that I am thinking of you. I have been telling Jacob about his friend, so he is thinking of you also
 I hope that one day they will get to meet one another. (Same for you and me!). I am glad they got the bleeding to stop. Now you can work towards getting him home where he belongs. Take care.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#6
06-05-2003, 01:53 PM
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sounds great!!! Keep that in mind next time they bronch him because if they "poke" him accidently, he may have bleeding problems again, so make sure it's addressed. perhaps he can have Vitamin K prior to each bronch?? Just a thought.
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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