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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-15-2007, 10:10 AM
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were off the see the ENT,the wonderful ENT of McMaster
Where off to see the ENT, Hopefully we will get the PMV today, that would be awsome!!were also going to see the PEDs, where going to check out how much waight he has lost, hopefully it hasnt been as much as I have thought it has been...
__________________
Marqus,1 year, trached-stenosis,floppy throat, webbing, tracheomalacia-The happiest little boy you will ever see http://s166.photobucket.com/albums/u90/marqus06/  
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#2
06-15-2007, 10:29 AM
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Good luck! Kate just started on the PMV and she's doing great. Of course they did drill 2 tiny holes in it, to make it less difficult, but so far so good!
Good luck again!
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#3
06-15-2007, 10:50 AM
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Good luck with the pmv. Let us know how things go!
Juliex
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#4
06-15-2007, 10:55 AM
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Sending good vibes your way.
Robin
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Former 24 weeker, decannulated 2 times, retrached Feb 2006. Mom to 4 crazy kids: Owen 8, Hanna, Bailey and Olivia 6 yr old triplets. Always striving for the perfect airway!  [/url]
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#5
06-15-2007, 04:32 PM
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good luck w/pmv. It's cool when they start figuring it out. Let us know progress.
__________________
  Cathy Mom to Justice 7/02 never stopping mad man, and Jordan 2/04,c.p. trach. Tracheomalacia, gj-tube, reflux w/nissen, seizures, spasticity.... & it's official the epilepsy dx. LOVES Sponge Bob, birthday party's,& misses school http://jordanakapeanut.blogspot.com/
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#7
06-17-2007, 09:19 AM
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Good luck. I so hope that he gets the PMV so you can hear his sweet little voice. Let us know how it goes.
Tess
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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#8
06-17-2007, 09:19 PM
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thank you all for the thanks, but so far no PMV, BUT the head RT and Head Nurse are going to do a home visit and decide then weather they are going to go ahead on the PMV or not, I REALLY hope they do, I would love it to peaces!!!!!! I will keep everyone up to date on the PMV issue
__________________
Marqus,1 year, trached-stenosis,floppy throat, webbing, tracheomalacia-The happiest little boy you will ever see http://s166.photobucket.com/albums/u90/marqus06/
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