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| Ventilator Kids For parents and caregivers of children on ventilators. |
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#1
06-09-2007, 10:39 AM
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New type of vent
Found a news article from another group I am on. It talks about a new type of vent. Its only 12 inches by 6 inches! Talk about tiny. Thought some of you might want to read the article too.
http://www.stamfordtoday.co.uk/news?articleid=2939191
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#2
06-09-2007, 10:51 AM
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WOW!! Look how small it is, and the circuits are small too! We'll have to keep an eye out on this one. Thanks for the info.
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~Carrie
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#3
06-09-2007, 12:48 PM
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I'm waiting for the implantable vent ... with no external equipment at all. I've no doubt it will be developed ... someday.
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#4
06-09-2007, 05:07 PM
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Quote:
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY
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#5
06-10-2007, 08:05 AM
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Diaphragmatic pacing...that's what Christopher Reeves had that let him off the vent. That's what I want to do with Donovan, if it is possible.
http://www.averylabs.com/bp/introduction.html I don't know all the clinical indications or contra-indications but they are doing them at LA Children's too, Ann. 
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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#6
06-10-2007, 12:48 PM
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We have thought about this as well Melisande. Abby's doctor says that in another 15-20 years the technology will be even better. We might wait until Abby is older and then help her make the desicion. It is a pretty invasive surgery as of now. But hopefully in years to come it will be all the better.
Tess
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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#7
06-11-2007, 01:31 AM
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Newport HT50
The Newport HT50 is about that size, has handles to hang on a wheelchair, has an internal battery that lasts up to 10 hours (my setting of 500 volume, 3 peep, and 12 respirations lasts 6 hours, is the only vent with an internal peep, and is very user friendly.
It's the best!
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#8
06-17-2007, 07:21 AM
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both my daughters use the legendair. Internal battery can last almost at least up to 5-6 hrs, external battery can last up to 9 - 10 hrs. on their settings that is.
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http://s7.photobucket.com/albums/y28...etime005. jpg mom to 3 girls, 2 youngest are handicapped with something unknown and undiagnosed and both are both fully ventilated 24/7 with trach's. 3rd daughter is a beautiful healthy teenager  [/color][/b]
Last edited by Scottish Phantom : 06-17-2007 at 07:26 AM.
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