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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-03-2003, 08:33 AM
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I sent out a prayer request for Michael and that Dr. Cotton would be able to help him. Within several hours, our prayers were beginning to cause change. Yesterday afternoon, after giving Michael's request for healing to God, I got a call from the insurance company. As an HMO, they refused payment for Michael's second opinion in Cincinnati and told me that I would have to see a doctor at Children's Hospital in Washington, DC. which my ENT did not speak with. At the same time, Cincinnati told me that they could use the spot for another little boy who needs surgery. I trust that God's plan is greater than mine and that we are being led on a different path for a greater purpose. One day Michael will be healed. One day he will walk (they said he may never walk), he will say "I love you, mama" (he can not speak with the trach), and one day he will breath. I know this to be true in my heart. Good luck to those of you in Cinci.
has anyone heard of Dr. Zalzal in Children's Hospital in Washington, DC?? Good reputation or bad??
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious 
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#2
06-03-2003, 10:24 AM
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Dr. Cotton's office basically said...oh well...go to him first and if he can't do it, then try, try again. Thanks a lot!! I thought they would have been more proactive then that! But you know, there is a reason for this, and I'm okay with that. The worst thing is that I won't get to run into you!! Shucks!! But one of the ladies I send the prayer request to knows of Dr. Milmoe, who is in Zalzal's group. We'll see. As I said, I was a little disappointed at first, but I have to believe there is a master plan greater than mine. I believed that when Ben died, and I believe it now. There is also a Dr. Tunkel at Johns Hopkins who is in network and may be another choice. Good luck to your son on his scope!!! I'm thinking of you!! Sue
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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#3
06-03-2003, 01:04 PM
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UNBELIEVABLE!!! Our secondary insurance said they'd pay for it!!!! We're on to Cincinnati!!!! Catch you there Bobbi!
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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#4
06-03-2003, 09:15 PM
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That is awesome news!! Keep us posted.
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Anne, mom to Evan, born 1/18/01, preemie, TEF/EA repaired, subglottic stenosis, laryngeal web, trach at 6 wks, LTP 8/02, decannulated 5/17/03 , Mic-Key button removed 7/2/04. http://www.tracheostomy.com/trachkids/kids11/evan http://anne-evan.blogspot.com
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#5
06-03-2003, 09:21 PM
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I am sooooo excited for you. Cotton is the best!!!
God's plan is awesome!!!!!! Cory
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Parker, 3 Yrs. old., trached at 3 months (Nov. 2000) due to VC paralysis/paresis, DECANNULATED 9/5/03. A great litle guy who loves Hulk, Spiderman and is mommy's true love !!!!! (Page 8 of Aaron's Page)
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