Hello everyone! Â*I'm so glad to find this message board! Â*My little boy, Jacob, was trached last year on Sept 11 (what a day!) and is at home, doing well, using an LTV 950 vent. Â*He has doubled his wt since his trach, and is trying to walk now. Â*Jacob was born with tetrology of fallow with absent pulmonary valve, a heart defect that did a lot of damage to his lungs and upper airways. Â*Because he is so active, we had to drop the crib mattress down to prevent him from flying out of the bed. Â*Well, this made trach care a NIGHTMARE on our backs. Â*My brother-in-law built us a trach care board that is wonderful! Â*It fits over the top of the crib rails and makes stabalizing Jacob easier, and saves our backs. Â*If anyone is interested in a picture of the board (so that you can build one) just e-mail me and I'll send you a picture. Â*
Miracles Do Happen!!!
Jacob's mom, 3 yr old with DiGeorge/VeloCardioFacial Synd., TOF with APV, trached 9-11-01, G-button, LTV 950 for 2 1/2 years. Decannulated April 12, 2004!!!