T minus 26 days....and counting!!

[Tigeress1026]

Okay I am trying not to hold my breath and trying not to get hopeful that we will finally go to suregery, but the closer it gets the better things look. They have rescheduled her CTR two times now. It was orginally scheduled for May 14, which would have been this coming MOnday, then becuase of scheduling errors they rescheduled for May 17, which would be this coming Thursday. However, last month they called and said that they needed to reschedule it for June 7. When I asked why, they stated that the cardiothorasic surgeopn our ent wanted with him for the surgery wasn't available until then. So reluctantly I said okay, I mean what else am I going to say, right?!

So now we are lesss then a month away and everyone keeps asking me if I am getting nervous. My answer to this has been that I'm trying to not think about it, because they ahve already rescheduled it twice. But in reality I am nervous and can't stop thinking about the suregery. I know she is doing so well right now. SHe is playing outside every day and is having no problems breathing , no wheezing, no coughing, no nothing. So I am very hopeful that the surgery will go well and they will be able to inflate one lung with no problem and be able to reconstruct the trachea. She seems very strong right now. But I am still nervous about the surgery itself. I keep telling myself it's in GOD'S hands and he knows best.

We are also going to be moving at the end of May into a new house. Our apartment has just gotten too small for us, so we are moving into a duplex with a basement and garage and huge yard. I am excited about this, but also nervous that I won't be able to get everything settled in the house before Elizabeth's surgery. It seems I have more on my plate then I know what to do with lately.

So as I said, it's t minus 26 days and counting. Wish us luck and pray that everything goes well. I will try to get on here and keep everyone updated or have another member from the board keep everyone updated during surgery. I hope everyone has a wonderfula nd happy mothers' day as you all deserve just that!!

Jennifer

[lovemymak]

I'll be praying that the surgery date sticks and goes off without a hitch!

[TommysMommy]

Good luck! How about getting a POD or some sort of storage unit to just shove everything into until after the surgery? We did that when we were not able to move into our home right away but had to be out of the old one. We then went whenever we had time and just grabbed a few boxes to take home and unpack.

[JWorthington]

Will keep everything crossed for the surgery. It is so annoying when they reschedule
Good luck with the house move too.

Love Julie

[Shylent]

Still thinking of you guys ! Tons of &

[rncbarbie]

That is so exciting I will be praying for you and your family. Keep us posted

[hcs_mom]

I am praying for a very successful surgery for Elizabeth and an uneventful recovery.

After having been down the reconstruction road 3 times, I can honestly say that I was a wreck before each and every one. Come here as often as you can during Elizabeth's recovery. I did. Even on Hannah's darkest days back in January, just coming here and getting all the prayers and support did make it a little easier to bear.

I think Tylenol PM was my nighttime friend for at least a week prior to every procedure. Try to enjoy these last few days before surgery...take it all in. After this surgery, your emotions will be all over the place. I felt things I didn't anticipate, even though I had been through it before...even though I had watched countless others here go through it...nothing can prepare you.

Good luck.
Jennie

PS-Congrats on the new place!

[Tigeress1026]

Thank you everyone for understanding and sending your prayers and good luck wishes. I have found the board so helpful over the last 2 years. I'm so glad there are other's out there that understand what I am going through. Again, thank you.


Jennifer