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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-09-2007, 07:04 AM
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Update on James
Things are going well so far.. he flew through the surgery with no surprises.. they placed the rib graft at the" old trach" site and closed the stoma.. He has been on and off awake.. overall I would say he is in OK spirits.. he can communicate by writting and is asking to take all the tubes out.. All in all he looks great, peaceful and resting comfortably,considereing all he has been through,The plan is to head back to the OR tomorrow YEH!!!!!!please continue to send prayers and great thoughts our way..they help beyond belief.. Thanks for all the supprort and prayers from people who TRULY know where I am coming from.. May Gos bless all of you in your time of need!!!!!!!!!!!!!
Ellen 
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#2
05-09-2007, 09:17 AM
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   hope all continues to be smooth. Cathy
__________________
  Cathy Mom to Justice 7/02 never stopping mad man, and Jordan 2/04,c.p. trach. Tracheomalacia, gj-tube, reflux w/nissen, seizures, spasticity.... & it's official the epilepsy dx. LOVES Sponge Bob, birthday party's,& misses school  http://jordanakapeanut.blogspot.com/
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#3
05-09-2007, 12:35 PM
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Hope things continue to improve
Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#4
05-10-2007, 12:37 AM
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glad to hear all went well so far keep us posted...
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Kristen mom to Brooklyn 29 months,born 9/24/05with PRS,trached 9/29/05,decan 8/21/07, gt place 10/31/05 removed 5/20/05..she is the light of my life and amazes me everyday,definatly a lil actress!
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#5
05-10-2007, 12:39 AM
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James is still in my prayers. Thanks for the update, I hope all goes well tomorrow
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#6
05-10-2007, 01:10 AM
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That sounds like very positive results! yay! Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#7
05-10-2007, 01:55 AM
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I hope things continue to go well for James. Thanks for the updates.
__________________
Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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