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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-08-2007, 10:50 PM
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Good news from the opthamologist
James had a follow up with the opthamologist yesterday. He hasn't been tracking objects or focusing since his last apnea/brady's episode that ended with him being trached, and they diagnosed him as having central blindness. At the follow up he responded to lights and the doctor got him to track up pretty well, but only side to side a little bit. He's pretty opthamistic that James' vision will improving more. He still may be legally blind, but we know he can see a little now.
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Amanda - James' mommy. Born 8-5-06 @ 33weeks with esophageal atresia and a tracheo-esophageal fitsula. NICU for 16 weeks. G-tube, EA /TEF repair, aortapexy, nissen. Trach 3-27-07 for subglottic stenosis. 
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#2
05-08-2007, 11:23 PM
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that's good news...its gret that he is making progress
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Kristen mom to Brooklyn 29 months,born 9/24/05with PRS,trached 9/29/05,decan 8/21/07, gt place 10/31/05 removed 5/20/05..she is the light of my life and amazes me everyday,definatly a lil actress!
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#3
05-09-2007, 12:25 PM
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That's great!
 May his vision continue to improve.Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#4
05-09-2007, 01:33 PM
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Sounds like a step in the right direction! He sure is cute.
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Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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