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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
04-09-2007, 12:35 AM
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Nathan in the hospita!
Nathan is in St. Louis Children's Hosp. Admitted early Sunday morning. Infection of unknown origin--trach aspirate growing all sorts of funk--waiting on blood cultures--he's on iv antibiotics! His first non-surgery related hospitalization since birth.We are freaked, he is very ill, keep us in prayers!See his website for updates...
ww.caringbridge.org/visit/natethegreat2005 Thanks! Kristy
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Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!! 
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#2
04-09-2007, 12:36 AM
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Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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#3
04-09-2007, 02:47 AM
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Oh no !! Hope everything gets figured out and Nathan feeling better soon !!
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May Mommy to Sebastian(1-24-06), hardcore former 26 wk preemie, had and kicked butt of many issues, dealing with a few more , including autism. Trached 4/16/06 @ 3 months due to severe BPD and mild Tracheomalacia. Decanned 9-9-09 and doin' just fine !  http://sebastiansjourney.blogspot.com/
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#4
04-09-2007, 05:57 AM
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I hope he kicks it-whatever it is-and is home again soon! Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#5
04-09-2007, 06:42 AM
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Oh no!
Kristy,
Hope Nathan is well quickly. Donovan is having a rough spring this year...allergies. Take care and keep us posted! 
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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#6
04-09-2007, 08:39 AM
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Kristy -- I hope the antibiotics kick in soon and Nathan is racing up and down those hospital halls in no time. What floor are you on? Hang in there and remember to take care of yourself. I'm sorry I'm not in STL to come by and keep you company like you did for me.
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#7
04-09-2007, 08:52 AM
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Kristy,
From one hospital inmate to another, I'll send you some good thoughts. Hopefully they'll get him all better very soon. Hang in there. Christy
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Christy, Mom to Murphy, (8), Harlie (6) and Cooper (4). Harlie has Goldenhar Syndrome & VACTERL Assoc. Missing left ear/canal, left eye anomalies, g-tube & trached due to underdeveloped jaw, 5 open  surgeries, three jaw reconstructions (still trached, though), spinal fusion surgery, 30 surgeries total so far. www.lifesinceharlie.blogspot.com [IMG]  [/IMG]
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#8
04-09-2007, 09:09 AM
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Kristy
Oh poor Nathan, I hope he is better soon Love Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#9
04-09-2007, 09:16 AM
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Mom_to_an_angel
Sending prayers for Nathen. Also hugs for mom and Dad.
And a teddy bear for Nathen 
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Vennesssa and Chris Married on June 5, 2004 ~ going on 4 yrs but feels like 50 yrs KIDS Stepkids- Morgan 14, Brooke 11  Mine- Randy 11, Christian 8 Ours- Ashley (stillborn 4-9-05)  , Jordan born 6-10-06-(bi-lateral paralized vocal cords)  trached on 6-23-06Decanned on 8-20-'08, Had laser sugery to fix the cords. The back half of one side is gone for now, but will grow back in time. My site http://www.myspace.com/mom_2_angels
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#10
04-09-2007, 11:42 AM
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Kristy,
I hope they figure out what the problem is right away and are able to treat him and get him well QUICKLY. We'll be thinking of Nathan and your family. Susan
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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