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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

03-15-2007, 10:57 AM
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Member
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Join Date: Aug 2006
Location: omaha, nebraska
Posts: 140
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Trach ordering question
I'm getting ready to place our monthly order and have a question. Riley uses a custom cuffed Bivona flex thingymajigger. Should I order a new one every month? I currently have 2 "newer" custom that we rotate every week in and out and an older custom is her emergency bag. There are no bronchs or scopes in the next 6 months so we have no changes planned. Should I order a new one every month? The cuffs seem to break easily. Can I get a new custom every month?
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03-15-2007, 11:05 AM
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Join Date: Sep 2005
Location: MA
Posts: 751
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I'm not sure about the custom made trach'ss but Collin had a Bivona cuff and we got one every month. I felt better when his trach was changed once a month, especially if he had gotten over a cold or somthing.
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Linda - Mom to Collin, former 30wkr, IUGR, Severe BPD, in NICU 9months (decannulated 8/03), g-tube (removed 9/10), Neurodevelopmental Delays (secondary to complex medical history),ADHD-Inattentive Type, Sensory Processing Disorder
www.nicumama.com
www.purplelotuswebsitedesign.com
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03-15-2007, 11:15 AM
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Join Date: Jun 2005
Location: Delaware
Posts: 875
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you'll probably want to order at least one a month (we get two) and occ change them out because they will wear out, fall in the toilet, or whatever...you'll also want to have some on hand in case there is a backorder or other shortage.
You can check with your company how many you are allowed per month, our DME wanted to give one a month, so we just got an order from the peds to get 2 per month--and managed to ride out last year's Shiley shortage because we had some spares.
Sebby
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Menna born 1/19/04 former 24 weeker, trach 4/16/04 for tracheomalacia, developed subglottic stenosis. CTR 7/27/05--double stage LTP 3/13/ 2008.. Decan October '08....healthy happy crazy kid!!
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03-15-2007, 02:46 PM
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Senior Member
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Join Date: Apr 2005
Location: Home of the OU Sooners!
Posts: 4,112
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Check with your DME and see what your insurance covers every month. Order them ever month even if you think you won't need them because it is bound to happen that one day you need extra and can't order any due to them being out, or not time to reorder etc.
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01)
EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY
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03-15-2007, 02:55 PM
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Join Date: Aug 2006
Location: omaha, nebraska
Posts: 140
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Will do  Thanks for the quick response ladies!
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03-15-2007, 03:35 PM
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Senior Member
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Join Date: Dec 2004
Location: England
Posts: 10,932
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I agree, take the maximum you're entitled to each month, you dont wanna be left short.
Juliex
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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03-16-2007, 08:56 AM
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Member
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Join Date: Jan 2007
Location: phelps kentucky usa
Posts: 103
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Boy oh Boy My supplier only give me 4 HME said all insuraces are not wanting to cover them even state insurances and we never get a new trach ever we keep using the same ones over and over. Her HME are 4 dollars each I got 2 from hospital and 4 from him. How long do you all use yours? The doctor wants her humidified at night and wear HME at day time. I just do not understand it. And another thing we are not using our Apnea machine no more I wanted to send it back my insurance is not covering it 450.00 a month sheeewwwww alot I know as I think to but I was told that I could not send it back to them until I had a discharge letter from her doctor. Can you believe that one? Were doe sthe insanity end with doctor bills they are hounding me to death. If you do not have it you just do not have it. And the system will not help says hubby makes to much and no possibility for spin down..hmmm where is my taxes going to ?
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