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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
04-21-2002, 12:32 AM
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Welcome to the board! It sounds like after 15 years, you will have a lot of advice for those of us with young ones. Look forward to hearing more about Josh.
Erin Lewis (Mom to Sara 18 months old, trach, subglottic stenosis, tracheomalacia, GERD) 
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#2
04-21-2002, 02:00 PM
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Hi! Welcome to the board. Maybe you could tell us some things about Josh like how you take him around, can he walk or is he in a wheelchair, how you have maintained your sanity, etc. That is NOT a joke. Our son has been trached for 11 months and I think I'd be insane after 15 years of this business. What is your trick? Thanks for sharing. You will undoubtedly have a lot of ideas for us! Also, what kind of trach ties does Josh use? Anything clever you'd like to share? Take care, Sue
__________________
Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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