Mlb today

hcs_mom · #1 02-26-2007, 08:49 PM

OK, Hannah had an MLB with a flexible bronch today. Overall, we got good news. The reconstruction still looks good, very very mild stenosis (and I mean, he was able to comfortably put in a 4.0 tube with a HUGE leak, could have put in a 4.5, which is where she was at the end of Jan, but he didn't want to irritate the airway further, especially since she's been sick). They cleared a little "junk" out of that right lung, nothing overwhelming and NOTHING like when she was in ICU with that aspiration pneumonia. We will get culture results from the lung wash by the end of the week and have a clinic visit with pulmonary next week.

Sooo, we knew that arytenoid that was lasered back in Nov last year was still prolapsing some. However, it seems that with this low muscle tone Hannah still has...well, it's allowing that arytenoid to prolapse even more, which is where the retractions and noise are coming from overnight. Great. So, ENT and pulm both really think that as she gets stronger, that the significant prolapsing will just subside and the breathing will get easier. To be sure that this isn't worse than we think, we go to ENT clinic next week for a scope in the office to see what that arytenoid looks like when she's awake. As long as that looks OK, we will just do more "watchful waiting" and hopefully let time heal her.

BUT, if it's prolapsing significantly when she's awake or if it gets worse, they will have to laser it again. Not such a big deal with a trach. Without a trach, it will require 24-hour intubation. Not the route anyone wants to take right now as her poor lungs are still recoving from the pneumonia. And the fear with Hannah is that 24-hours on a vent will lead to several days since she reacts so poorly to surgery, being intubated, etc.

So, for now, we accept the mild retractions and intermittent noise as her new baseline and just deal with it. I am so nervous about that scope next week...I am so afraid that she is worse off than we think...I cannot watch them intubate again...I cannot watch another 24 hours of those ghastly drugs...I cannot watch that ICU screw up another extubation.

Please say a little prayer for Hannah that we can skate by with this issue and that more healing time is all that she needs.

Jennie

Melisande · #2 02-26-2007, 09:24 PM

Oh, Jennie,

We will most certainly pray for Miss Hannah....She and you deserve a break!!!

sandra · #3 02-26-2007, 10:36 PM

Praying that it is mild enough to leave alone. Good news overall!

Whitney · #4 02-26-2007, 10:39 PM

Yes Jennie, I hope time is all she needs. Please keep us posted on the bronch next week. I sure hope your summer includes lots of fun, pools, and NO BRONCHS or retractions for that matter

JWorthington · #5 02-27-2007, 03:06 AM

xJx

alissafaith's mom · #6 02-27-2007, 02:24 PM

Sending prayers your way!
mandi

lovemymak · #7 02-27-2007, 02:59 PM

I'm praying that sweet Hannah will get a break. No more surgeries or intubations for her!

Jacob's Mom · #8 02-27-2007, 03:12 PM

Jennie,

Hannah will definitely be in my thoughts. As I've said before, ENOUGH ALREADY! She has been through so much and I pray that she will get strong and be able to get past all of this.

Amanda

Alex's mom · #9 02-27-2007, 03:21 PM

Hoping a little time will do the trick.

katie's mum · #10 02-27-2007, 03:31 PM

Hi Jennie,

Sending lots of prayers to little Hannah that you will get through all this and then be able to enjoy the trach free life.

Lots of love,

Bea.