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Old 01-29-2007, 09:59 AM
TommysDad TommysDad is offline
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http://video.google.com/videoplay?docid=6681394898533516035&pr=goog-sl&hl=en
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Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09.

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“With man this is impossible, but with God all things are possible.”
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Old 01-29-2007, 10:16 AM
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madelyn and rynns mom madelyn and rynns mom is offline
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OMG, he looks sooooo wonderful!!!!! He's at Children's now I see!!! Gotta love the fishies!!! We have Chicago appts on Feb. 28 and March 12 Maybe we can scoot over and see you guys!!! I'd love to meet you!!!

Love Kris
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses! !!
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Old 01-29-2007, 10:16 AM
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Beautiful video and congrats on getting Tommy out -- he looked so fascinated with the world outside his hospital cubbie.
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
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Old 01-29-2007, 10:17 AM
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YAY! Oh my God, I watched that and remembered the day Milan finally got to go out of the well-guarded doors of the NICU, and I was in tears all over again! YAY TOMMY! Go for the DOOR! GO FOR THE DOOOOOORRRRRRR!!!!
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Milan - 10/01/04, 31 wk preemie due to maternal HELLP syndrome. Has challenges. DECANNED AUG 2006 and so far, so good with the nose breathing!
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Old 01-29-2007, 10:21 AM
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Mom2TwinsPlus1 Mom2TwinsPlus1 is offline
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What a cutie. You better watch that boy. I think very soon he is going to be sneaking out the front door to go home. Love the video thanks for sharing
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01)

EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY
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Old 01-29-2007, 10:28 AM
TommysDad TommysDad is offline
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Kris,

No offense, but I REALLY hope that you cannot scoot on over to see us, as I hope that we will be at home by then. If we are in the hospital, certainly, that would be great (but remember, we have the dreaded MRSA flag). Also, if we are out, depending upon the chaos, you would be welcome to visit us at home, but think it might be out of the way depending upon what route you take.

Tom
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Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09.

CarePage: BabyBoyce

“With man this is impossible, but with God all things are possible.”
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Old 01-29-2007, 10:33 AM
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He looks like he had so much fun. How wonderful you taped his first outing. Thanks for sharing!
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Old 01-29-2007, 10:48 AM
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A great video! It had me in tears! He looks fantastic--such a strong boy pulling at his toys!!! I hope he is home soon.
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Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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Old 01-29-2007, 10:57 AM
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Awwwwwwww, loved it. He is a dolly. So beautiful.

Kellyxoxo
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See Indie- http://www.tracheostomy.com/trachkids/kids12.htm
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Old 01-29-2007, 11:56 AM
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Super video! Bright, alert little guy; I predict that boy will go far!
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Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube.



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