Trach is out

#1 01-24-2007, 09:37 PM

Ok so Hunter's trach is out now. Due to the fact that a nurse left him byhimself while gettting a breathing treatment. She could not get it back in. I think basically is because she didn't know how. There was blood everywhere when I got home. Asked the nurse what the blank happened?? She said she didn't know. Well I have seen her many times leave his room while on the vent, and I know that is what happened this time. But anyhow, was just wondering how long or when I should be hearing Hunter trying to talk. He makes screaming sounds, and babbles, but that is about it. The trach has been out since the 18th of Dec.

lovemymak · #2 01-24-2007, 09:45 PM

That is such a horrible decan situation! We just had a horrible one with our nurse recently too and it took me 4 tries to get it back in! She's still bleeding and it's been 12 days!

I'm not sure how long it will take for Hunter to actually talk. Does he have Speech or OT? I think it will probably take a while to get control over his vocalizations. I hope he starts soon though!

Sarah

Doug-Iowa · #3 01-25-2007, 07:06 AM

How many folks have downsized traches to use if you can't get the normal size in after an accidental decan? We kept a new sterile one or 2 sizes down trach taped to Mason's bed and in the suction case all the time. One time we had to go 2 sizes down to get one to go back in then waited a few hours and stair stepped back to the normal size. When mason was first trached all we had was a suction cath to use if we needed to and were very lucky we never had to. I am just wondering if each of you have a back up step down size or two to fall back on when needed.

JWorthington · #4 01-25-2007, 07:31 AM

We have a smaller size trach if we can't get the regular size in (thankfully never had to use it!) and we were also taught to have a cut down suction catheter to hand in case of emergency situations when you can't get any size tube in. This will keep the airway open until you can get to a hospital.

But, if the trach's been out since December and Hunter is doing ok, then it looks like everything is going to be fine. Just wanted to wish you the best of luck

. Can't advise on the speech I'm afraid, as Sam still has his trach and can't speak.

Love Julie

lovemymak · #5 01-25-2007, 08:36 AM

We also keep the next size down at the bedside and in the emergency bag. From the sound of Hunter's story though, it sounds like the stoma was closed before the nurse even noticed anything....am I right?

babyhugger · #6 01-25-2007, 10:15 AM

We, also, keep smaller sized trachs available. Speech is a pretty individual thing. How old is Hunter and how is he developmentally?

#7 01-25-2007, 11:13 AM

Hunter is 2 1/2 and he is devlopmentally delayed. In some areas more than others. I 'm just worried because when he turns 3 he will be going to preschool for his therapies. They will not come to the home anymore. I'm afraid he will not be ready for this, such as talking and being able to communicate with others. He will sign some, but is very stubborn,and expects mom or nurse to do it for him. I'm trying very hard to get him ready for preschool. Tough love thing!! It's so hard. As far as the trach goes, hopefully it stays out. It all depends on the result of the sleep study that he just had. The stoma was closed up because the nurse trying to get it back in made it hamburger meat. The Dr. said that it would be potentially hazerdous at that time to try and put it back in. So he opted on leaving it out, since Hunter seemed to be doing fine in the ER. Thanks for the post!!

Kate · #8 01-25-2007, 12:12 PM

Quote:

Originally Posted by [b

Quote[/b] (Huntersmom @ Jan. 25 2007,12:13)]The stoma was closed up because the nurse trying to get it back in made it hamburger meat.

That is horrible!! I cringed reading it!

Speaking--I honestly have this "dream" that the trach will come out and Mitchell will look at me and be like, "Whew mom, what took you so long to get this thing out--I have so much to tell you." And then he starts singing. OK OK I know it doesn't work like that---but like I said-it is just something I picture from time to time.

It really depends on the child. I think that if he goes to school-it actually may come faster. Is he walking? Sounds goofy but Mitchell really started making a lot of sounds and tried saying words after he got a handle on his walking. They say that movement is really important and if they aren't doing it yet--sometimes they are concentrating too much on moving than talking.

Good luck--I'm right with you...Mitchell will start preschool in the fall-he only has a couple of signs but is really trying hard to talk but only has a few different sounds right now.

manda · #9 01-25-2007, 12:21 PM

Since we're knew to the entire trach thing, I hadn't really considered an accidental decan. I'm glad he's doing okay. We keep a trach a size smaller at her bedside and in her "to go" bag.

Aleah starts speech therapy soon, so we expect to getting a PMV very shortly afterward. She's also going to be going to audio-verbal therapy next month to teach her how to "listen" with her hearing aids.

McKenna&clan · #10 01-25-2007, 04:04 PM

Oh man! I don't know what I would have done to that nurse...talk about crazy mad. I'm glad that Hunter has been OK and no adverse effects happened. What the

was that nurse thinking and why didn't she call anyone???

Mac has been trached since 2 months, had a short stint for 2 months at age 4 where she was decanned for 2 months and then recannulated due to an infection that involved her airway. We always could hear noises since the trach was placed...you know the darth vader sounds. Around age 2 1/2 she started figuring out how to manipulate her noises and make them louder and draw attention to herself. Well, that was all the motivation she needed and there on out started being very vocal. At age 4 1/2 now she talks alot, but her speech is garbled in some areas due to a tounge reduction she had at age 2.

I think alot depends on what your child's sitation is, airway narrowing, webbing or BPD, ect. If the trach was only because of a premie situation to allow the lungs to grow and mature, then I would think "speaking" would come easier but it is so individual and what the child's specific needs are. Any other delays or development issues?

One thing for sure is that when your child hears their own voice and sees the emotion it evokes in you...your child will want to do it again and again and again!
Good

Janet