Today is *not* the day

hcs_mom · #1 01-17-2007, 12:03 PM

In the short time that I stepped away to email this morning, it became apparent that Hannah's lungs were not functioning as they should have been. There is concern that there is some collapse (most likely due to the large air leak and the fact that they keep weaning vent settings when she isn't getting most of the air they give her anyway). ENT has called the pulmonary docs back in to do a bedside scope and try to hurry up the healing. If there is collapse, they can help to "reinflate". If there is just "junk" there (from being on the vent and sedated), they will clean her lungs out again. We are having "issues" with this new attending and are getting them addressed. She has been an absolute b!@#$ to me and I am NOT going to tolerate her attitude toward me or my child. When I tell you something isn't right, you better
!@#$%^& listen to me. When I express my concerns, you better be taking it in and explaining why or why not you do or don't agree. Don't just say no and walk away. I have HAD IT and have asked to speak with the head of the ICU. I don't expect a better response from them but I will NOT tolerate her condescending attitude. OK...done venting...

Please just pray that she rebounds quickly. This moron attending wanted to put in a bigger tube, I said she wasn't touching her until she talked to ENT. ENT said not bigger, just cuffed, so a little bigger, but not what she wanted. I know she is ROYALLY ticked at me because I have made a BIG stink about something she said to me yesterday and we actually argued (she said Hannah didn't have aspiration pneumonia, then had to retract and tell me today that after getting a "full update", that it was most likely aspiration pneumonia. grrrrrrrrrrrrrr). How can I trust this woman? This isn't the only thing that I am concerned about.

I will update as I can. Someone, please, remind me why we did this????
Jennie

sandra · #2 01-17-2007, 12:25 PM

Jennie,

I am so sorry! Stand your ground and push back as much as needed. The dr's who have been with you through all of it will know that you are doing what is best for Hannah!

I hope Hannah heals quickly! I wish we could make this easier for you!

Hugs, Sandra

LKN · #3 01-17-2007, 12:27 PM

Oh Jennie! I hope they are able to get things worked out soon. We are praying for all of you--especially sweet Hannah. There is nothing more annoying than doctors and/or nurses who think they know more about your child than you do. Keep fighting! Big hugs and prayers for all of you!

Ann · #4 01-17-2007, 12:30 PM

Hang in there Jenny and good for you for standing up to the

doc! It's so draining having to not only worry about your child, but also having to constantly monitor the "professionals" providing the care. Compare what you know now to what you knew when Hannah was in the NICU -- you've come a long way momma bear!

RobiL · #5 01-17-2007, 12:45 PM

I repeat what Ann said.

Give them hell if they try to push you around. YOU know Hannah best. Stand up for Hannah.

I'll be

for you.

Robin

Whitney · #6 01-17-2007, 01:03 PM

Jennie,

I am soo sorry you have to deal with that idiot on top of everything else. I am glad you are standing your ground. I hate it when they are condescending

Now, I hope you are able to get some resolution for everything. The one thing I hope gives you encouragement is that her airway sounds like it is doing well. Once you get past this resp stuff, I hope you are in the clear.

Stay strong and don't tolerate any

for one second. It is the LAST thing you should have to deal with.

Hugs and prayers Jennie

twintotwin · #7 01-17-2007, 01:07 PM

Jennie...Jennie...Jennie,
I am so sorry you are dealing with this

on top of that

on top of what is best for sweet Hannah.

Mom2TwinsPlus1 · #8 01-17-2007, 01:28 PM

Wish I could offer some great words of advice but I have never been in your place and most likely never will be, since Emma will probably always need her trach.

However I can offer words of support. Hang in there, I do understand stupid doctors and frustrations while in the hospital. I feel for you. I will pray things get better soon.

Jacob's Mom · #9 01-17-2007, 01:46 PM

Quote:

Originally Posted by [b

Quote[/b] (hcs_mom @ Jan. 17 2007,13:03)]Someone, please, remind me why we did this????

Because you are looking into the future. You KNOW what is best for Hannah.

Condescending Â*

Â*docs make me sick. Good for you for standing you ground!

Â*

Vent here any chance you get.

cariaad · #10 01-17-2007, 01:49 PM

Jennie, can you call a care conference (all involved doctors)and ask (insist) that the ethics committee send a representative? That is what I'd be doing. I can't handle doctors who "know better" than me about my child. Granted, they have years of medical education...but i have 6 years of Allison education! I'd be giving them hell as well. Hang in there. Im praying for Hannah and her resp. issues to clear up quickly. Hugs Deb