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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
01-09-2007, 02:20 PM
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I never thought we would be glad that Seamus "only" had RSV. We were happy it was not another shunt infection. Four days in the hospital is not pleasant, but there are worse alternatives. He is happy to be home, happily watching Dora on the couch!
Liz
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Mom to Nate 13, Clara 11, Zane 5 and Seamus 5. Seamus has Beare-Stevenson Syndrome, a craniofacial syndrome. Trached 11/11/05 for severe sleep apnea. Also has a VP shunt and wears a hearing aid and glasses. 
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#2
01-09-2007, 07:43 PM
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Thank-God for Dora on the couch! I am so glad that he is home. It is kind of funny for the problem to be "only" RSV but I guess we take what we can get.
Kellyxo
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Kelly, mother of , Indira 6 (trach and g-tube)[/color] [/color]and Max 4. [/color]When there is no  you are the reason I bound out of bed. Thank-you for giving me life! See Indie- http://www.tracheostomy.com/trachkids/kids12.htm
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#3
01-09-2007, 08:06 PM
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Only RSV....good deal.
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Jakob, born Dec 02, Pfeiffer Syndrome, trached at 5 wks age due to mid-face hypoplasia, cranial vaultx2, monobloc, mid-face distraction, g-tube, pyloric stenosis, nissen, nasal stents, VP shunt, tonsils, adenoids, uvula all removed, tongue suspension, future pilot!!
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#4
01-09-2007, 08:47 PM
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I'm so glad Seamus is home and no shunt infection. RSV is definitely the less of two evils. Vaminos Seamus!
 Sarah
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Sarah, Mommy to Malakai (9), Aubrey (8), and Keturah (6) trach, vent, Chiari I, BVCP, CCHS http://s109.photobucket.com/albums/n73/lovemymak/  
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#5
01-09-2007, 09:10 PM
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 Seamus! Welcome home!!Annette
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Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.   
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#6
01-09-2007, 09:51 PM
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It's one time when you'd take RSV as a diagnosis, huh? Good to hear he's home!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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