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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
11-27-2006, 05:15 PM
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Hey guys,
We're leaving at 4 am to bring Ash to the hospital. She's having a PICC line put in tomorrow and she's having her 3rd cranial vault/forehead advancement on Wednesday. Her docs plan on bringing her forehead forward an inch. Please keep us in your thoughts and prayers. I'll update ya when I can. Annette
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Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.   
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#3
11-27-2006, 05:52 PM
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Ashley - I will send all my positive vibes for your surgery going incredibly well.
Annette - I'm sending you loads of hugs and hope all goes well. Ashley's such a sweetheart. Love, Kate XXX
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
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#4
11-27-2006, 06:21 PM
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We will be thinking of you guys and praying that all goes well! Give Ashley a big
 from me and Hannah!Here's a hug for you Annette  Please keep us posted!Sharon
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Sharon...mom to Hannah, my beautiful little §≈earth-angel≈§. CP, moebius syndrome (a rare disease affecting the cranial facial nerves and characterized by facial paralysis)...Reactive Airway, GERD, trach, g-tube, and lots and lots of suctioning! Recent Baclofen pump for spasticity and scoliosis surgery, Jan 2008, curve corrected from 80 degrees to 25 degrees and doing great!!!!
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#5
11-27-2006, 06:22 PM
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Hugs Annette! I hope everything goes well and Ash has a quick recovery. Keep us posted
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 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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#6
11-27-2006, 06:33 PM
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I hope everything goes well. Praying that Ashley's recovery is fast.
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#7
11-27-2006, 08:05 PM
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Annette, I will be keeping you and Ashly in my prayers. Please don't forget to update us. Love Kerry
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#8
11-27-2006, 08:18 PM
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Love and Luck to you and miss Ashley!!!!!!!
 Call me if you need to talk!!!!! Love Kris
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses! !!
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#9
11-27-2006, 08:26 PM
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Annette, you and Ashley will be in my thoughts and prayers for a successful surgery and a speedy recovery.
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#10
11-27-2006, 08:55 PM
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I hope Ashley's surgery goes well and that she is feeling better quickly.
Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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