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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
04-18-2002, 10:27 AM
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Oh, Tara, I am soooo happy for you guys. Please make sure to post as soon as you can afterwards with all the details. Sounds pathetic, but it gives us hope and something to dream about. What other parent would dream about a surgery?? US.. Good luck, and I am so encouraged that you said wearing the PMV may or may not indicate the readiness of decannulation. Are you sure?? Prayers to you and yours, love, Susan aka Michael's mom
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious 
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#2
04-18-2002, 01:34 PM
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Tara- I am so understanding of where you are right now and wish you the best. My son also will go for possible decannulation on the 23rd. I'm so nervous and excited by the possibility. My thoughts and prayers are with you and your sone. I look forward to hearing how things went.
take care Cory P's MOM 
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Parker, 3 Yrs. old., trached at 3 months (Nov. 2000) due to VC paralysis/paresis, DECANNULATED 9/5/03. A great litle guy who loves Hulk, Spiderman and is mommy's true love !!!!! (Page 8 of Aaron's Page)
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