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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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Old 04-17-2002, 11:28 AM
p's mom p's mom is offline
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i'm definately a veteran of this trach stuff and have been blessed so much with parker's diagnosis and treatment. He is doing really well but....his scope is Tuesday and this is really, really, possibly it for us. this could be decannulation for him and i'm so nervous. It's crazy because he's probably had 10 of them. But this one could be it!!!!!!
He's wearing his pmv all day except nap time and pulls his trach out very frequently. but I just can't see the inside to know if he's really truly ready. Vocal Cords are so crazy, you just never know. please pray for us for tueday....gotta go parker just pulled his trach out......He's found a fettish with this for the past 3 days, is he trying to tell us something???

thanks for listening
P's MOM
Cory
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Parker, 3 Yrs. old., trached at 3 months (Nov. 2000) due to VC paralysis/paresis, DECANNULATED 9/5/03. A great litle guy who loves Hulk, Spiderman and is mommy's true love !!!!! (Page 8 of Aaron's Page)
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Old 04-17-2002, 12:23 PM
Michael's mom Michael's mom is offline
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I'm so jealous I could cry!! I think he seems ready, and this is definately the season for decans it seems! Let us know. It's so hard riding that roller coaster, isn't it? But I think this is the time!!! Prayers to you and yours, Susan
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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Old 04-17-2002, 02:39 PM
p's mom p's mom is offline
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thank you susan!!

your time will hopefully come soon.

cory
p's mom
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Parker, 3 Yrs. old., trached at 3 months (Nov. 2000) due to VC paralysis/paresis, DECANNULATED 9/5/03. A great litle guy who loves Hulk, Spiderman and is mommy's true love !!!!! (Page 8 of Aaron's Page)
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