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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#21
06-06-2012, 06:11 PM
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When Adrian was a baby he'd get those kids of poops if I ate dairy (he couldn't tolerate it even in my milk) but never quite that bad. But it didn't matter what diapers or wipes I used, it was his poop that burned! Thank goodness it was an easy solution for us. I just couldn't indulge in milkshakes.
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Shauna, mama to 2 fiery, red-headed kiddos, Adrian (age 8, one quirky kid but no diagnosis!) and Charlie (age 5, severe quadriplegia CP, non-mobile, non-verbal). Charlie was trached March 26, 2012...we're new to this!  
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#22
06-06-2012, 10:16 PM
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yeah...Alexander didn't tolerate anything made by Similac - instant rash on top of his rash from the disposables. Not good.
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Janet, cruncy pagan automotive engineer mom to Alexander, born at 27 weeks, 1 lb 7 oz | vent/trach/gtube @ 5 months for BPD | g-tube free 7/11, trach free 8/11. Also mom to Bethany born @ 28 weeks, 2 lbs | gtube @ 5 months | trach/vent @ 6 months for BPD, bronchomalacia  
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#23
06-07-2012, 12:02 AM
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I cut dairy out of my diet with no improvement, then did Alimentum, then Alimentum Ready to Feed, and finally Neocate. While Neocate improved a lot of things for him it didn't help with the diaper rash. My daughter did Alimentum and that cured all of her issues. Again, she couldn't do breastmilk with no dairy in it, she still would scream in pain at night.
Both of them have now passed milk trials and my daughter passed soy. We have not tested him on soy as he doesn't need soy. My daughter we tested because when we eat out when didn't want to have to worry about handing her food off of our plate. His poop is better with a blended diet and the throwing up is slightly better. We could probably trial without the wipes, but I am not ready to do that one 
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#24
06-07-2012, 03:20 AM
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we never used anything either
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  Life is not measured by the number of breaths we take, but by the moments that take our breath away. Mum to an ex 24wk prem now 4 yrs old with Chronic lung disease, chryocid web, immobile vocal cords and vision impaired from ROP. Decanned 10th March 2011  , plan to repeat LTR due to body reabsorbing graph, date unknown 
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