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| Video Forum This forum is for tracheostomy-related embedded youtube videos only! |
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#1
09-09-2012, 09:39 AM
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Living with kids kept alive thru technology
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Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube.  Home Page: http://www.bissells.com 
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#2
09-10-2012, 11:02 AM
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That was fantastic Cindy! It had me in tears. I think I might post that on Ainsley's blog I liked it so much.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#3
11-05-2012, 10:57 PM
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Waaaa! So sweet!!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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#5
11-08-2012, 09:14 PM
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Beautiful!
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Mom to Aubrey 25, Alfonso 30 (Aubreys new husband), Andrew 22, Angelo 9: Trached at 8mo due to car accident. Subglottic stenosis, Paraplegic, g-tube (closed) neurogenic bladder and bowel. Decanulated 07/25/07. Re-Trached 9/26/07
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#7
11-28-2012, 11:23 AM
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Beautiful, loved it so much, thank you for posting. Wondering if there is a way to submit pictures of our trache kids on this board and have a video made. All our kids are AMAZING!!!!!!!!!!!!!!!!!!!!
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 Kara. Mom to Bailey (3/14/2006), Mason Premie (09/17/2007), and Cillian - Digeorge Syndrome, Tetralogy of Fallot, ASD, VSD, Pulm artresia, non functioning pulm valve (replaced with human homograft valve 8/2011), mild tricuspid valve failure (repaired 8/2011), tracheostomy, g tube, nisson fundo, double hernia surgery, submucosal cleft palate, aortic stents, pulm hypertension, tracheobronchial malacia born 1/10/2009. Three sweet angels.
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