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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
01-02-2004, 02:19 PM
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Hi Everybody,
My husband emailed me this news story today (click on link below); it is the 8th most emailed story on Yahoo! news today. Â*Thought you guys might be interested to read? Â*These brothers have a rare chromosome disorder (similar to Lily) and are both trached. It's kind of funny (in that weird, special-needs-mom-humor way); when I read the article, I was wondering what the "catch" was. Â*It's interesting, and of course my heart goes out to the family, but having a child with a trach, g-tube, and chromosome abnormality is so hum-drum day-to-day reality to me at this point, it was like reading a news story like "LOCAL WOMAN, 32, EATS CEREAL FOR BREAKFAST." Â*Know what I mean? Are these folks on the board or on Aaron's page by chance? Hope you're all doing well, Erica (Lily's Mom) Link to News Story
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 Our fabulous Lily was born 5-26-01 with partial trisomy 7q, Pierre-Robin sequence, VSD, GER; had trach, GT, Nissen at 4 weeks, cleft palate repair at 6 months and 18 months. Decannulated 11-15-04. Proud big sister to Benjamin 10-10-03, baby Vivienne 3-5-07! 
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