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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-18-2006, 03:31 PM
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Mary Carolyn's LTP is scheduled for July 5th with Dr. Cotton. I am so nervous...I find this strange comfort with the trach. She is so happy right now and I just hate to mess that up. So, we leave on the 29th because Dr. Cotton wants to do one more scope on the 30th just to check it out one more time before moving forward with the LTP.
Scared silly... Melissa
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Melissa, mom to Mary Carolyn-born full term March 29th 2005. Â*Subglottic hemangeoma-resected 6/2005 - Trach 8/2005. Single stage LTP-7/5/06 and decannulated-Â*Love her to death! 
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#2
05-18-2006, 09:37 PM
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I have not had to deal with an LTP, but wanted to wish you the best. I hope it goes wonderful!
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#3
05-18-2006, 09:41 PM
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I second Sandra; I hope everything goes well!!
__________________
 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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#4
05-18-2006, 09:55 PM
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I'll be praying that the surgery goes well!
Amanda
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#5
05-18-2006, 09:58 PM
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We can go through this together - Zoe has a bronch this coming Wednesday and if all looks the same, an LTP on June 7th. Right now, I feel the same as you. Life is good now, why change things? I hope all goes well for you guys. I hope I can help you out a bit by answering some questions in the next few weeks.
Lora 
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Lora - Mom to Zoe (12/26/04), former 27 weeker, BVCP, Subglottic Stenosis, mild reflux, g-tube http://www.caringbridge.org/visit/zoeglasel
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#6
05-19-2006, 06:43 AM
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Brandon is also having his LTP with Dr. Cotton sometime in July. I can't offer any words of wisdom on this one, but know that you're not alone in this scary situation!!
Lots of  ,  , and ,Missy
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Mom to Brandon, born April 25 '05 @ 27 wks, he thinks he's Tigger. Â*Also mom to Michael, born Dec 9 '97, best big brother in the world and way too smart for his own good, and Lexie who was stillborn Aug. '04, who's looking down from Heaven shaking her head at her brothers!!
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#7
05-19-2006, 07:24 AM
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Melissa
You are bound to feel scared as the surgery approaches, you have had the comfort of the trach and knowing that Mary Carolyn has been happy, it is very hard. Val - I remember how scared you were before Matthew had his! Good luck for the 5th July Julie
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#8
05-19-2006, 11:40 AM
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I'm so glad you are scheduled! I am sure everything will go well and that Dr. Cotton will take good care of her!
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Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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#9
05-19-2006, 06:57 PM
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I wish you so much good luck.
Teresa
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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#10
05-21-2006, 06:50 AM
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i wish you much luck. we haven't had to go through it but just wanted to wish you good luck on july 5th.
becca
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becca, mom to jonah dob 11-25-03.treacher collins extremely delayed but the light of our lives and very determined to prove everyone wrong especially the doctors.
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