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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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05-17-2002, 06:01 AM

Michael's mom Michael's mom is offline

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Join Date: Mar 2002

Location: Virginia, USA

Posts: 305

Nadine, welcome, and WOW, that sounds horrible. First, just know that things "happen" in this world, and there is no explanation of how we got here. Most of us beat ourselves up at first, but once you get used to the trach, it's not so bad. Where do you live? Do you have any questions about insurance or equipment or getting nurses in your home? This is a great place to post questions, very knowledgable parents with GREAT advice. Take care, Sue
Mother to Michael, 1 yo, tracheomalacia, hypotonia

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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious

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