03-12-2002, 04:08 PM
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Senior Member
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Join Date: Mar 2002
Location: Fort Collins CO
Posts: 1,540
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I rarely take Celia out with me anywhere. People are always smoking at the entrances of places or restruants only have an imaginary wall between smoking and non-smoking. I always think of all the people who have touch something she might touch. We live in Kansas too so the wind blows more than it doesn't. Plus taking all the things she needs is exausting for me and my husband. We also have 2 other girls ages 12 and 8, so they end up helping to haul things around if we go anywhere. Maybe I'm just too paranoid but I just think it's safer to keep her at home. What does the rest of the world do with their trached kids?  ? Gretchen(Celia's mom)
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http://mamazgirlz.blogspot.com/
Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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