Hi I dont think Ive update on Alli in a bit...she hit 15 lbs this week-finally! She is 1 day away from being 20 months old. Her recent visits to drs have gone great. The pulm said she sounded wonderful and if she sounds as good in a month we can DC nebulizer treatments!! The cardiologist wants to see her back in Jan only because he doesnt like to release preemie patients before they're 2. The orthopedic dr couldnt believe she was the same baby he had seen at 11 months barely holding her head up while on tummy (she is about to let go and walk on her own). We are still having g tube and fundo related issues but see a ped GI in MAy. We also go to the ORL on May 10 to try to schedule to decanulate. So, all in all we are doing very well here! Deb
Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08