I copied this from Zachary's website. Also, someone emailed me about the stem cells and I lost your email. My husband upgraded our computer and it lost all saved emails. Please email me again at email@example.com.
Hey guys! I am so pleased to update everyone that as of yesterday morning, Zachary is off all supplemental oxygen. This is absolutely HUGE because he has never been able to do without the extra oxygen. His sats are excellent at 96 and above. His therapists have all seen improvements in his since the stem cell transplant. He is more alert, smiles all of the time, interacts more, his vision seems to be improving, he is moving his arms and legs more, wiggling and repositioning in his sleep more, his grasp is better, his trunk strength and head control are better, his appetite has increased greatly, and the best part...NO SEIZURES! He is like a different child now. He has 1 1/2 week left on the phenobarb and he will be off of that medication. Now for fundraisers, we are planning to sell raffle tickets for an emerald and diamond ring as well as 4 UT football tickets. We will also be having a benefit breakfast at Applebees in Kingsport in October. If anyone is interested in selling raffle tickets or tickets to the breakfast for us, please let me know! I can mail them out to you to sell in your area! Oh and we also have silicone bracelets made that say "Zachary's Fan Club" to sell for a fundraiser as well. They should be ready in 3 to 4 weeks. I will post a pic of them along with information if anyone is interested in those as well. THey are going to be so cute!! We are currently planning more oxygen treatments for October and another stem cell transplant in November. Zachary is showing so much improvement, we have to get the money together to go again!! I hope you guys can help us with our fundraisers! Thank you so much for the prayers and thoughts for Zachary. I am feeling so blessed!!!
Mom to Zachary, 5 years old - trach, vent dependant 24/7, hypoxic ischemic encephalopathy, diaphragmatic palsy, CVI, VP shunt due to hydrocephalus, Mommy's Pride and Joy!
Baby Brother Christian 17 months