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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

07-11-2005, 05:17 PM
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Join Date: Jun 2003
Posts: 464
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I can't remember what day Matthew's LTP is scheduled for, but know it's this week. How are you and Matthew doing? I've been thinking about you guys all weekend, along with everyone else dealing with such stressful situations right now.
Erin
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Mom to Sara 10/23/2000 - trach, congenital subglottic stenosis, laryngeal web, LTP 04/03, eosinophilic esophagitis, Â 2nd LTP 7/20/05 decannulated 7/28/05, retrached 8/25/05, decannulated again 11/11/05!
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07-11-2005, 05:23 PM
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Mentor
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Join Date: Jun 2002
Location: Columbus OH
Posts: 1,886
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Me too. For some reason I had the 9th in my head, but that was Sat. so I know that couldn't of been the day of his surgery. Pls let us know how things are going.
Anne
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Anne, mom to Evan, born 1/18/01, preemie, TEF/EA repaired, subglottic stenosis, laryngeal web, trach at 6 wks, LTP 8/02, decannulated 5/17/03 , Mic-Key button removed 7/2/04.
http://www.tracheostomy.com/trachkids/kids11/evan
http://anne-evan.blogspot.com
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07-11-2005, 07:28 PM
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Senior Member
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Join Date: Dec 2003
Location: Ohio
Posts: 2,990
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I believe Matthew's surgery is tomorrow. I pray everyone is well and everything is go!
Good luck!!!
Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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07-11-2005, 07:36 PM
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Join Date: Dec 2003
Location: Denver, CO
Posts: 5,387
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Val
I hope Matthew has a safe and successful surgery. Â*I hope you are doing okay. Â*I am sure you are very stresses, but know we are thinking of you right now! Â*
Best wishes to you and Matthew
Whitney
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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07-11-2005, 08:06 PM
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Mentor
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Join Date: May 2004
Location: Missouri
Posts: 5,260
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We're thinking of you guys too, Val and Matthew, here in Missouri! Hope to here good news soon! 
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!
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07-11-2005, 08:11 PM
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Join Date: May 2003
Location: Atlanta, GA
Posts: 4,469
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We'll be keeping you in our prayers and thoughts for a successful surgery. Hope all goes well, and please update when you can.
Amanda
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.
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07-12-2005, 06:09 AM
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Senior Member
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Join Date: Dec 2004
Location: England
Posts: 10,932
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Val
Thinking of you and sending prayers for Matthew. Update us when you can.
Julie
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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07-12-2005, 09:47 AM
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Member
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Join Date: Aug 2002
Location: Delaware, OH just north of Columbus
Posts: 851
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I have been thinking of you Val and Matthew. I am hoping all is well. We will be looking forward to an update with good news for Matthew!
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Laurie - Mom to Evan (the E-man), 27 week preemie, born 2-23-02, trached at 3 months for severe BPD. Vent dependent until 10 months, G-tube placed at 17 months, oxygen dependent until 2 years, 3 months, decannulated 6-27-04 at 2 years 4 months. The most enthusiastic, positive person I've met.
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07-12-2005, 03:48 PM
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Member
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Join Date: Sep 2005
Location: MA
Posts: 751
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I too have been thinking about you....you are in my prayers....
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Linda - Mom to Collin, former 30wkr, IUGR, Severe BPD, in NICU 9months (decannulated 8/03), g-tube (removed 9/10), Neurodevelopmental Delays (secondary to complex medical history),ADHD-Inattentive Type, Sensory Processing Disorder
www.nicumama.com
www.purplelotuswebsitedesign.com
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07-12-2005, 04:45 PM
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Matthew's surgery is today! I assume he still had it she not sent email or post it was cancel.
I am praying for them as well!!!
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