I think I'd be inclined to give it a shot if I were in your position.
Just curious if you've looking into Caleb seeing a Chiropractor? I saw one several times a week growing up to try and improve my scoliosis...it just became part of my after school routine. They did lots of stretching, massaging, and electrolosis (sp?) on all of the tightened muscular areas on my back.
I know that this form of therapy is sometimes viewed as a waste of time, but if insurance wold cover it, it could be worth a shot??
SUSAN-mom to Harrison, born full-term(11/1/10) with an undiagnosed congenital diaphragmatic hernia (CDH), hypoplastic right lung (caused by hernia), trached at 4 months, g-tube and fundo at 6 weeks. Home in March 2011. Weaned completely off of the vent in July
Wearing PMV 24/7, 02 at night, failed decannulation in October. Hoping for better results next time!