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06-09-2012, 04:06 PM
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Join Date: Aug 2011
Location: Caruthers, CA
Posts: 222
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Using feeding pump for oral feeds
Maybe this will work for somebody else. It seems to just sneak the milk into his mouth, so he doesn't get mad at the process of drinking it.
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Jenny McLelland
Mom to Josie (born 12/18/09) (the healthy one) James (born 04/12/11). James has brachytelephalangic chondrodysplasia punctata (dwarfism with short stubby fingers and severe mid face hypoplasia, hence very small nasal passages, hence the trach), G-tube, cervical spine instability at C1/C2 pending skull to C7 spinal fusion.
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07-01-2012, 05:04 PM
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Junior Member
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Join Date: Oct 2010
Location: Washington
Posts: 82
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I'm so glad you posted this. Even though we are unsure if Owen will ever be able to eat typically this gives me the idea to use when we do first introduce him to foods through the mouth. 
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 Maren- mom to Owen born 7/17/10: Born with Pierre Robin Sequence, 5-Q Deletion, significant hypotonia, trach 7/26/10, g-tube and nissen fondo 8/6 (fondo failed),vent patient. Making improvements daily! Also mom to Emma- big sister to Owen. Great helper and adores her little brother!  Number 3 arrived and is a great addition. Will soon be big sister to Owen but that is ok!
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07-03-2012, 09:17 PM
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Join Date: Aug 2009
Location: Pennsylvania
Posts: 474
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Jenny, so cute and brought back memories of Cillian doing the very same thing. He is 3 now and drinks from a regular Gerber sippy cup. Keep it up, it does help 
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 Kara. Mom to Bailey (3/14/2006), Mason Premie (09/17/2007), and Cillian - Digeorge Syndrome, Tetralogy of Fallot, ASD, VSD, Pulm artresia, non functioning pulm valve (replaced with human homograft valve 8/2011), mild tricuspid valve failure (repaired 8/2011), tracheostomy, g tube, nisson fundo, double hernia surgery, submucosal cleft palate, aortic stents, pulm hypertension, tracheobronchial malacia born 1/10/2009. Three sweet angels.
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07-31-2012, 07:21 AM
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Join Date: Feb 2010
Location: Vancouver ,Canada
Posts: 142
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He is so cute..... what a brilliant idea?
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07-31-2012, 08:05 AM
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Join Date: Nov 2011
Location: Central Ohio
Posts: 106
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I have a friend with a little girl who is tube fed. She had a friend over one day and HER little boy (a typical 1 year old) somehow got it disconnected and sucked the bag half dry before they realized what he was doing!
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Shauna, mama to 2 fiery, red-headed kiddos, Adrian (age 8, one quirky kid but no diagnosis!) and Charlie (age 5, severe quadriplegia CP, non-mobile, non-verbal). Charlie was trached March 26, 2012...we're new to this!
 
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