 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
07-22-2012, 10:13 PM
|
||||
|
||||
TT&A Tomorrow(Monday 7/23)
Ainsley has surgery scheduled tomorrow. I'm calling it a triple tonsillectomy since the surgeon is taking the tonsils, adenoids, and (hopefully) lingual tonsils. I was reading back through my blog (my memory) and found that when Ainsley was supposed to have this surgery back in 2009 that it was rescheduled twice and on the third date the surgeon decided not to take them when he was in the OR. So 2,400 miles later post Cinci visit he agreed again to do it and that date is tomorrow. Of course Ainsley caught a bug from her older sister and had a 103 fever on Wednesday. Somehow she's now fever free and doesn't have a cough (the deal breaker). We go in tomorrow at 10:45 (Pacific Time). There is a chance they'll turn us back. They know what's been going on. I think they know as well as we do that getting all the stars to align with trach kids is pretty tough. So with any luck she'll have the tonsils removed tomorrow. Funny how after so many surgeries I still get nervous every time. I'm not daring to assume this will fix her OSA or anything. But I do hope that it will open up her airway enough that when she is sick she can continue to wear her speaking valve and maybe continue to eat some orally. Time will tell.
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
|
|
#2
07-22-2012, 10:25 PM
|
|||
|
|||
|
Good luck. Keep us posted
__________________
 [SIGPIC]Karen----Mom to Faith (6), and Natalie born 10/12/07 @ 25 weeks, 1lb 3oz. Came home 6/10/08 with a trach, vent, nissen with g-tube, and pda ligation. BPD, reflux, subglottic stenosis. Off the vent!!!! Double stage ltp 5/10. Decan 5/11/11!
|
|
#3
07-23-2012, 12:10 AM
|
|||
|
|||
|
Hope Ainsley is doing well.
__________________
 Ana, mom to Aldo. Full term on 10/10/2010. Congenital Anterior Glottic Web & Subglottic Stenosis. 10/29/2010 Single stage LTP; web removed. Reconstruction surgery was a success but Aldo developed edema below the vocal chords and continued struggling to breath. Tracheostomy on 04/01/2011. Eats by mouth. High blood pressure resolved (it was probably due to hard breathing).
|
|
#4
07-23-2012, 01:28 PM
|
||||
|
||||
|
Good luck today! Update us when you can. Hope it was a go and hope it went well!
__________________
Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
|
|
#5
07-23-2012, 03:55 PM
|
||||
|
||||
|
How'd it go? (Did it go?)
__________________
Mom to Micah- born 8/31/2009- Diagnosed with Cervical/Facial Lymphatic Malformation in utero. Trach/G-tube at 5 weeks. www.littlemicah.blogspot.com
|
|
#7
07-23-2012, 06:06 PM
|
||||
|
||||
|
Susan hope surgery went ahead & Ainsleys doing well post op
__________________
 Marie-mum to 3 boys -Ben(May 05) Marc(May 11) & Dylan(Sept 07)-Tetralogy of Fallot(repair may 08),Trached due to severe subglottic stenosis(July 08),G-tube(oct 08),Nissens(Feb 09),First Stage LTR(Aug 09),CTR(Nov 11).
|
|
#8
07-23-2012, 06:45 PM
|
||||
|
||||
|
Good Luck!! I hope everything went well and she has a quick recovery
__________________
 Mom to Aven, healthy as anything, 5 and Caleb ,born 39 weeks,9.9.11, Trach, Gtube,Nissen,10.6.11, Mandibular distraction 8.8.11,tonsils/ adenoids 2/27/13, DECANNED 4/18/13!!no official diagnoses,profound hearing loss in left ear,cardiac abnormalities,extra T4 vertebrae. Pierre Robin Sequencehttp://mycalebslife.blogspot.com "For you created my inmost being; you knit me together in my mother's womb.. I am wonderfully made." Psalm 139:13-14
|
|
#9
07-23-2012, 07:09 PM
|
|||
|
|||
|
I hope all went well. Keep us posted!
__________________
 SUSAN-mom to Harrison, born full-term(11/1/10) with an undiagnosed congenital diaphragmatic hernia (CDH), hypoplastic right lung (caused by hernia), trached at 4 months, g-tube and fundo at 6 weeks. Home in March 2011. Weaned completely off of the vent in July Wearing PMV 24/7, 02 at night, failed decannulation in October. Hoping for better results next time!www.caringbridge.org/visit/harrisonsnow
|
|
#10
07-23-2012, 07:22 PM
|
||||
|
||||
|
Good luck. We also had a case where we went into the OR and the surgeon decided in theatre to take the adenoids only out. Then several years later we had an "emergency" tonsillectomy. I still laugh at that. I would be mad at the first surgeon if I didn't know that tonsils can grow back so it might not have made any difference.
Fingers crossed that this helps with some of the issues and moves that airway in the right direction. Hugs to miss A.
__________________
Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 08:09 AM.