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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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Old 06-21-2012, 09:35 PM
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haikumama haikumama is offline
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I just wanted to pop in to say when we had our first visit to Cincy for the complete battery of aerodigestive tests we got a pretty extensive written report of all the doctors' observations and suggestions. It took a while to get it, though, and I remember frantically calling the nurses several times to figure out what was going on. At the time I was desperate to find out what they'd learned and what our timeline was procedures, surgeries, etc., so I was not very patient.

Also, we have been seeing Dr. Cotton for several years now (pre- and post- LTP) and while he's not going to linger and ask you about baseball scores, he's very to-the-point and has always been friendly. This time around, he even joked with us for a bit while in the patient consult room. I was so surprised that he lingered and joked I couldn't even come up with a witty comeback. Ha.

We usually stay at the Garfield Suites. It's not everyone's favorite because it's older and right downtown, but I really like it. The rooms are huge, the room service is good and affordable, and everyone there is very, very nice.

Good luck!
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Kari, mama to Sam, Georgia and Ike. Ike was born on 8/25/08 at 28 weeks 2 days after I had pPROM at 20 weeks. He was trached on 2/17/09 due to subglottic stenosis.

You can read about Ike - and other stuff - on my blog over at www.haikuoftheday.com.
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Old 06-25-2012, 02:11 PM
davidsmom davidsmom is offline
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Thank you everyone for your input and suggestions. I hope we have a good visit and we plan on visiting the zoo for sure. We only have one appointment on the first day in the morning so it may be a good day for the visit.
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Mom to David (9/15/2010) - Paralyzed vocal cords, trach (10/4/2010), g-tube (11/19/2010), club foot, right hip dysplasia (surgery 3/15/12, spica cast 3/15/12-5/3/12), arthrogryposis.
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