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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-18-2012, 04:49 PM
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Almost 8 weeks post-trach placement...
And things are totally back to normal at home and Charlie has been 100% healthy! The trach did, in fact, fix the problem we were hoping it would. Her autonomic storming has ceased entirely. Whenever she has symptoms of an impending storm, we put her on the vent and her body regulates.
 Snuggling with me at the park:  Holding one of my Mother's Day flowers:  We even go places with no one in the back seat to watch her (shhhh! don't tell!): 
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Shauna, mama to 2 fiery, red-headed kiddos, Adrian (age 8, one quirky kid but no diagnosis!) and Charlie (age 5, severe quadriplegia CP, non-mobile, non-verbal). Charlie was trached March 26, 2012...we're new to this!  
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#2
05-18-2012, 08:27 PM
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Great to hear the right decision was made and that things are significantly better! Hope you have fun this summer!
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 Alex, mom to Samantha born 38 weeks on March 7th, 2011 with Congenital Nasal Pyriform Aperture Stenosis, trached 3.30.11. Grade I Congenital SGS, diagnosed 11/30/11. Also mom to big brother Luke (3).
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#3
05-18-2012, 11:32 PM
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Great news! What a refreshing story.
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Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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#4
05-19-2012, 09:36 AM
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Yeah!! We all reach that point of driving with no one in the back seat...some sooner than others...good job Shauna!!
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#5
05-19-2012, 11:02 AM
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Ah, that's great! She looks happy and comfortable. It's fun to see pictures.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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