And things are totally back to normal at home and Charlie has been 100% healthy! The trach did, in fact, fix the problem we were hoping it would. Her autonomic storming has ceased entirely. Whenever she has symptoms of an impending storm, we put her on the vent and her body regulates.
Snuggling with me at the park:
Holding one of my Mother's Day flowers:
We even go places with no one in the back seat to watch her (shhhh! don't tell!):
Shauna, mama to 2 fiery, red-headed kiddos, Adrian (age 8, one quirky kid but no diagnosis!) and Charlie
(age 5, severe quadriplegia CP, non-mobile, non-verbal). Charlie was trached March 26, 2012...we're new to this!