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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

 
 
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Old 03-14-2011, 08:12 AM
Momoffive Momoffive is offline
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Join Date: Aug 2009
Location: Winnipeg, Manitoba
Posts: 495
Default One of the reasons you all mean so much to me....

I have been told that I have what people consider a "caregiver" personality. In my adult life, it has always been me in the workplace/family etc. making sure we do what is needed when there is a celebration or a tragedy. For me, it's natural and comfortable and I try to do what I can. When I went back to University in 2005 I thought that being part of a cohort of other adults returning to school, I would find others like me but even there, no one else seemed to take on that role. But here, in this online community, most of us who will never meet in real life, WOW - I am just overwhelmed with the way that help just flows - in other situations before this but right now, in trying to ensure that Mairead, a.k.a. Maleek's mom and the family are safe and find a way to fly out of Japan to a safer place. You're all just amazing and I'm so glad that I found you.
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Monica - mom of Vincent, Jeremy, Joey, Logan (15) and Robin (15) - trached since 11 months, vent (at night only since April '08), Bard button, O2 24/7, primary dx adenovirus causing scarring of lungs - hence, bronchiolitis obliterans.
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