Hi. I am intrigued by your name as I am "Zach's Grandma" too--thus zachgram. My Zach was born February 7 at 28 week gestation. He's been on a vent since birth and last week had a trach and a g-tube insertion. He's been diagnosed with congenital myotonic dystrophy, which is one of the seven forms of muscular dystrophy. I've read all the profiles on this site and so far have found none with Zach's problem. I don't know whether that's good or bad. Anyway, hang in there and I'll try to do the same.