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Old 04-14-2005, 02:31 PM
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Whitney Whitney is offline
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Alex is doing well and he is almost back to normal. We spoke w/ our ENT's office and we decided we will go ahead with decannulation tomorrow at noon. He will be in the hospital overnight for observation. I did not sleep much last night and I doubt tonight will be any different. I am very nervous and excited!! Please keep Alex in your thoughts and prayers. By all indications, Alex should do very well. I will let everyone know as soon as I can how Alex is doing!!

Thanks again

Whitney
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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Old 04-14-2005, 03:11 PM
Allison, Julian's mom
 
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Good luck to you and Alex. I look forward to hearing what happens. My son will hopefully be decannulated as well in a couple of weeks.
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Old 04-14-2005, 03:15 PM
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Good Luck! Â*Fingers and toes crossed and prayers, prayers, prayers coming your way. Â*Hugs to Alex and his mommy! Â*

Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
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Old 04-14-2005, 04:53 PM
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Good Luck!!!! We'll be thinking about you tomorrow. How absolutely exciting and nerve-wracking it must be! So happy things didn't need to be postponed and can't wait for an update.

Erin
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Mom to Sara 10/23/2000 - trach, congenital subglottic stenosis, laryngeal web, LTP 04/03, eosinophilic esophagitis, Â 2nd LTP 7/20/05 decannulated 7/28/05, retrached 8/25/05, decannulated again 11/11/05!
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Old 04-14-2005, 05:01 PM
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Oh my goodness!!! I'm so excited for you! Oh, I will be thinking of you all, all day. I hope it goes incredibly well.

Lots of love,

Kate
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Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met.
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Old 04-14-2005, 05:15 PM
Karen S. Karen S. is offline
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Wonderful news!! Best wishes coming your way. I will be thinking of you tomorrow and sending prayers your way.

Karen
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Mom to Hannah, born 12/5/2000 with Congenital Central Hypoventilation Syndrome. Trached at 3 weeks, vented during asleep hours only (Since March 2004). Along with her brother, Justin, they are the joy of my life.
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Old 04-14-2005, 05:50 PM
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Doug-Iowa Doug-Iowa is offline
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Awsome news for Alex. I hope everything goes well. We will keep you all in our prayers.

Jarita
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Doug, father of Mason. Hemangeoma in Trachea. Had Tracheostomy 5-14-2004 at 4 months of age. Decanned 8-19-05. Closure Surgery 5-5-06.
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Old 04-14-2005, 06:30 PM
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WeAdoptKids WeAdoptKids is offline
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WONDERFUL NEWS!!!!! This is the day we all hope for at one time or another. Give Alex a high five from Joseph. We will be praying for a perfect day for the whole family.

Hugs,
Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count... Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all.

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Old 04-14-2005, 07:54 PM
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Whitney- I will keep your family and Alex in my prayers. You must be totally freaking out. It's D-Day! Hooray!!!! ~Kerry
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

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Old 04-14-2005, 08:05 PM
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Great news! We'll keep you in our prayers! Keep us posted for sure!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!

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